4th International Symposium on Hypothalamic Hamartomas

 

The 2019 Symposium aims to identify gaps in understanding and opportunities for future Hypothalamic Hamartoma research studies and collaborations.

Presented by Hope for HH and Children’s National Health System
September 12-14, 2019, Washington, DC.

 

Senior, mid-level, and young investigators, clinicians and researchers will gather for a two-day research symposium on hypothalamic hamartomas (HH), a rare disorder associated with refractory epilepsy, epileptic encephalopathy, intellectual disability, behavioral comorbidity, and endocrinological dysfunction. We will analyze HH as well as other disorders/diseases entities that involve hypothalamic dysfunction and other genetic epileptic encephalopathies also with psychiatric co-morbidities to find commonalities and distinctions that may inform investigations to the combined disorders. Current HH treatment and managements will be reviewed. Results of ongoing HH research into animal models, comparative effective treatment pilot, FMRI, genetic, and cannabidiol research will be shared and discussed. Multi-disciplinary specialists from around the world including adult and pediatric neurology/epilepsy, neurosurgery, psychiatry, neuroradiology, neuropsychology, genetics, endocrinology, epidemiology, cognitive sciences, and pharmacology will attend. Previous International Symposiums were held in Canada (2001), Marseille (2013), and London (2016).

Symposium Steering Committee

William D. Gaillard, M.D.

William D. Gaillard, M.D.

Children’s National Health System Washington, DC, USA</children’s>

J. Helen Cross, M.D.

J. Helen Cross, M.D.

UCL Institute of Child Health
London, England

Alexis Arzimanoglou, M.D.

Alexis Arzimanoglou, M.D.

University Hospitals
Lyon, France

Daniel Curry, M.D.

Daniel Curry, M.D.

Texas Children’s Hospital
Houston, Texas, USA

John F. Kerrigan, M.D.

John F. Kerrigan, M.D.

Phoenix Children's Hospital
Phoenix, Arizona, USA

Outline of Sessions & Topics

I. HH Primer including Discussion of HH related Comorbidities

II. HH Anatomy & Behavior
1. Anatomy/Neurobiology of the Hypothalamus
2. Imaging HH & Hypothalamic pathology
3. Pallisiter-Hall Syndrome
4. HH Neuropsychology and cognition: evaluation/findings
5. HH Psychiatric disorders and Treatment
6. Effect of HH surgery on behavior and cognition

III. Insights from Hypothalamic Syndromes and Epileptic Encephalopathies
1. Hypothalamic obesity
2. Hypothalamic Tumor syndromes
3. Prader Willi
4. TBI injury to pituitary
5. Tuberous Sclerosis an mTOR pathway disorders
6. Dravet Syndrome

IV. HH Research Updates & Opportunities
1. International Comparative Effective Study
2. Tissue repository
3. Genetics of HH
4. Imaging Insights from Connectivity Research Update
5. Rodent Model Research Update
6. CBD and HH

 

V. HH Surgery
1. HH Removal section
2. Laser Ablation
3. Gamma Knife Surgery
4. Open surgery
5. Focused Ultrasound

Scholarships for Young Investigators Available

 

To encourage young investigators to pursue hypothalamic hamartomas as an area of practice and research, a limited number of scholarships are available to defray registration, travel, and hotel costs. Investigators are eligible if they are actively enrolled in a doctoral program, residence or accredited program of postgraduate education in neurosciences/epilepsy or are new faculty (at or below the rank of Assistant Professor). Priority will be given to women, racial/ethnic minorities, and persons with disabilities. To be considered, submit the information below in a single email to ilenepennmiller@gmail.com. Please write “HH Symposium Scholarship” in the subject line. The deadline is June 30, 2019. Awards will be confirmed by July 15, 2019.

(1) curriculum vitae or National Institutes of Health biosketch including list of publications (include only in press and in print) – limit to 5 pages
(2) narrative statement regarding the importance of your attendance at the Symposium for current and future goals (500 words max)
(3) one letter of support from your current research mentor that includes his or her name, position, contact information, and email

Registration Information

 

To register for the Symposium, please click here.

Fees (include sessions, lunch and refreshments):

  • Friday & Saturday - $150
  • Friday only - $100
  • Saturday only (half day) - $50

CME: Information coming soon.

Hotel: A limited number of accommodations have been reserved at the Kimpton Topaz Hotel, 1733 N. Street, NW Washington, DC. Rooms can be reserved by visiting here or calling 1 (866) 238-8235. Please reference group code: HHH

For more information: Contact Ilene Miller at ilenepennmiller@gmail.com.

 

 

 

 

 

 

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