Feb 28 is Rare Disease Day – HH is Not Alone

Feb 28 is Rare Disease Day – HH is Not Alone

Feb 28 is Rare Disease Day – HH is Not AloneA disease, disorder, illness or condition affecting fewer than 200,000 people is considered RARE.There are 7,000 rare diseases and disorders.1 in 10 Americans or 30 Million people have a rare diseaseMore than ½ of people...
Meet Faith

Meet Faith

Faith’s Story My pregnancy with Faith was difficult, I developed a strange rash, which we never really got to the bottom of.  Due to the rash I had an ultrasound at 32wks to check the size of the baby.  It was during this scan that the radiologist noticed there was...
2017 International Epilepsy Day

2017 International Epilepsy Day

 In honor of International Epilepsy Day, an event created to promote epilepsy awareness in more than 120 countries, Hope for HH would like to highlight and thank our own international support community!In the last 5 years the Hope for HH Medical Advisory Board...
The Power of a Walk

The Power of a Walk

March 25th is the National Walk for Epilepsy in Washington DCThis annual walk has very special significance for Hope for HH – it is where two of our Founders – Ilene Miller and Lisa Soeby met to walk with their boys to raise awareness about HH and ended up committing...