Good Grief Batman!

Good Grief Batman!

Good Grief Batman! For a 5 year old boy recovering from HH surgery, what could be better than watching old Batman reruns on tv? Maybe a trip to the Batcave and a ride in the Batmobile? Impossible you say - not for kids living in Phoenix with challenging medical...
Izabella Michele Santos Doré (2008 – 2016)

Izabella Michele Santos Doré (2008 – 2016)

Izabella Michele Santos Doré passed away on October 18, 2016 due to complications of hypothalamic hamartoma.   Izabella is missed each and everyday by her family and all those who were blessed to have known her. “They that love beyond the world cannot be separated by...
Meet Gavin

Meet Gavin

Gavin’s Story Gavin was born on time and had a normal delivery. From the time he was about two weeks old we noticed him doing a sort of grunting mixed with squinting his eyes, like he was in pain. We noticed it happening quite frequently so we brought it up to his...
Cannabidiol (CBD) and HH

Cannabidiol (CBD) and HH

For approximately one third of people with epilepsy, their seizures cannot be controlled with the current regimen of anti-epileptic drugs (AEDs). Hypothalamic Hamartomas are no exception to this statistic. Studies are on-going to test the efficacy of cannabidiol, or...