Hope for Hypothalamic Hamartomas (Hope for HH) is a volunteer-based nonprofit organization founded by parents of children with hypothalamic hamartomas (HH).  Our goal is to create a single, credible source for information about the diagnosis, treatment, and support of individuals with HH. Every family touched by this rare disorder has a unique and often heart-breaking story of how they attained a correct diagnosis.

For any questions or feedback please mail to the following address or send an email to admin@hopeforhh.org.

Hope for Hypothalamic Hamartomas

P. O. Box 721

Waddell, AZ 85355


Hope for Hypothalamic Hamartomas’ Board of Directors is comprised of 4 extraordinary women who are parents of children with HH ranging in age from 6 - 16. Among us we have unique talents which include a business administrator and patient advocate; a lawyer and non-profit executive; a business analyst and web designer; and a student counselor and educational advocate. We have leveraged our collective expertise to found Hope For HH and have donated countless hours and dollars to bring Hope for HH from idea to fruition. In order to achieve our mission, we’ll continue to build our team of dedicated volunteers who will donate their talent, resources, and time to the success of Hope For HH.

At Hope for Hypothalamic Hamartomas (Hope for HH), we respect and protect the privacy of all visitors and users of our web site.

The Hope for HH Medical Advisory Board include members:

J. Helen Cross, M.D. (MAB, Chairman), Alexis Arzimanoglou, M.D., , Daniel Curry, M.D., John Fulton, Ph.D., A. Simon Harvey, John F. Kerrigan, M.D., M.D., Maya Lodish, M.D., Jean Régis, M.D., Harold Rekate, M.D., Jeffrey V Rosenfeld AM