HH and Genetics – Challenges and Opportunities Hypothalamic hamartomas (HH) have long been described in medical literature as sporadic (random) in their occurrence, and the precise cause has yet to be determined. Sometimes, however, rather than presenting as isolated...
EpiCARE News from Hope for HH UK Annual General Meeting (AGM) EpiCARE is one of 24 European Reference Networks established by the EU in 2017-18. ERNs operate as virtual networks involving specialist healthcare providers across Europe. They aim to tackle...
On 16 March 2016 the EU launched its first call for interest from medical and research centres wanting to apply to create and join a European Reference Network (ERN). An ERN is a network of centres of expertise on rare diseases, each one endorsed nationally by...
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