Meet Chloe

Meet Chloe

In October 2018, we first noticed Chloe having what we called staring episodes. She would all of sudden have a blank facial expression and not respond to us. These episodes would last for 45 seconds – 1 minute. Afterward, she would seem confused and sometimes...
Meet Dr. Christine Bulteau

Meet Dr. Christine Bulteau

Hope for HH is co-sponsoring the 4th International Symposium on Hypothalamic Hamartomas – a professional symposium for HH investigators, clinicians and researchers – in Washington DC Sept. 12-14. The Symposium aims to identify gaps in understanding and opportunities...
Saving Joelle

Saving Joelle

Joelle Rue was born in April of 1994. During Joelle’s 4 month well baby check-up her doctor told me to go to the hospital for an ultrasound of her head. There it was discovered that she had a large cyst and a tumor-like structure in the center of her brain.  She...
Meet Dr. Hanna Richardson

Meet Dr. Hanna Richardson

Hope for HH is co-sponsoring the 4th International Symposium on Hypothalamic Hamartomas – a professional symposium for HH investigators, clinicians and researchers – in Washington DC Sept. 12-14. The Symposium aims to identify gaps in understanding and opportunities...