This is My Why | Kathy Jensen

This is My Why | Kathy Jensen

During our annual board training, each board member was asked to describe their ‘Why’. Why do you support Hope For HH? Why do you volunteer your time? Why is Hope For HH important to you and your family? Why do you feel it is important to be an active...
Meet Lou

Meet Lou

Meet Lou – A Story of Hope Lou’s story, like many others on this site, begins with a series of misdiagnoses. When he was an infant he was making an odd sound — a  repetitive ‘ho-ho’ that wasn’t very laughter-like. Our baby would make noises every 15 minutes,...
This Is My Why | Kimberly Ranson

This Is My Why | Kimberly Ranson

Our team recently participated in board training and a mid-year strategic planning session. Due to COVID-19, both of these sessions were held virtually rather than in person as we had hoped. Like most organizations, our small nonprofit is feeling the impact of this...
A Story of Kindness | Sierra

A Story of Kindness | Sierra

My name is Sierra Crislip. I’m an hypothalamic hamartoma (HH) survivor. Although my HH was removed at an early age, it left me with an invisible disability. I have struggled since then with high social anxiety and a learning disability. I also experienced bullying...
Finding Me – CJ Soeby

Finding Me – CJ Soeby

We are so excited to have CJ Soeby as today’s guest blogger! CJ is truly an amazing young man who’s story past and present continues to inspire all who have had the honor of meeting him. CJ’s love of life, family, and helping others is ingrained in...