Welcome Volunteer Roza Wu To Our Team!

Welcome Volunteer Roza Wu To Our Team!

Heart of a Volunteer “The heart of a volunteer is never measured in size, but by the depth of the commitment to make a difference in the lives of others.” - DeAnn Hollis Greetings HH community! I wanted to take a moment and provide you some of my background. I was...
Meet Amanda

Meet Amanda

“Amanda, it’s time to get your shot now! Go grab your Birthday Bear.” I was diagnosed 21 years ago with a brain tumor when I was just one year old. When I think about having my brain tumor, I can remember the various scenarios and feelings that I went through....
What is Self-Care? | Year of the Caregiver

What is Self-Care? | Year of the Caregiver

What is Self-Care? Dear Caregivers, “Self-care is a continuous act of choosing to live your best life, no matter the circumstances.” I am not sure where I first read this, or who said it, but I wrote it down, and it keeps resonating in me. The definition of “self” is...
Meet Sofia

Meet Sofia

[see translation here] Hello, my name is Luis Paulo and I'm the father of the little Sofia. I'm writing this blog on Hope For HH share a little of Sofia's HH story. I'm hoping this will help spread information about hypothalamic hamartomas and the Hope For HH...