Meet Anniston

Meet Anniston

Josh and I found out we were pregnant with Anniston on our one year engagement anniversary (about 2 months before we got married) - the pregnancy was unplanned but we were both excited and felt blessed to have been able to conceive so quickly. During my pregnancy I...
Laser Ablation for HH Coming to Europe!

Laser Ablation for HH Coming to Europe!

Medtronic recently announced they received clearance via the CE (Conformite Europeenne) Mark to launch the Visualase MRI-Guided Laser Ablation System in Europe. This is great news for international HH patients that have been unable to use private pay insurance to...
August 17th – National Nonprofit Day

August 17th – National Nonprofit Day

Today is National Nonprofit Day. What kind of person starts a nonprofit anyway? I used to think it had to be someone that was a probably a celebrity, really smart, well connected, had access to a great deal of money and probably had lots of business sense. I had heard...
What Is That Seizure Called Now?

What Is That Seizure Called Now?

Diagnosing and classifying seizures recently became easier and more precise. The International League of Epilepsy (ILAE), the world’s main scientific body devoted to the study of epilepsy, revised its terminology in order to recognize that some seizure types can have...
Epidiolex Approved by the FDA for Epilepsy

Epidiolex Approved by the FDA for Epilepsy

Monday, June 25th, U.S. Food & Drug Administration (FDA) approved EPIDIOLEX®(cannabidiol) oral solution for the treatment of seizures associated with two severe epilepsy syndromes known as Lennox-Gastaut syndrome and Dravet syndrome in patients two years of age or...