What’s NEW at the HH DC Family Forum?

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All of our speakers are confirmed for the 2017 DC Family Forum. We heard YOUR feedback and recruited speakers on the topics YOU most wanted to learn about including executive function, rages, behavior, endocrine, memory, CBD etc.

If you have not registered yet, you will want to reserve your space ASAP.

The forum begins Saturday, Dec. 2 with a dinner and social gathering. Catch up with old HH friends or folks perhaps you only know on Facebook and meet new families to make lasting personal connections with families who just “get it.”

On Sunday, Dec. 3 we will come back together from 8:30 until 4 PM for up-to-date information from thought leaders inside and outside of HH.  Dr. Jack Kerrigan will kick the meeting off with an overview of  “What’s New in HH Treatment and Research.” This discussion will share new insights about laser treatment and clinical trials for focused ultrasound.  It will also outline research being underwritten by Hope for HH made possible by your generous support and donations.

Following authors and international experts, Dr. Madison Berl will discuss cognition and memory. Dr. Berl is a neuropsychologist whose research includes working memory in pediatric epilepsy and executive function across pediatric psychiatric disorders.  She is prepped to discuss how these issues uniquely challenge HH patients. Following Dr. Jay Salpekar will discuss HH & Psychiatric Co-Morbidities and Behavior.  Dr. Salpekar is the Director of Neuropsychiatry in Epilepsy Program at the esteemed Kennedy Krieger Institute. He is poised to address the behavioral complications associated with HH.

After lunch and more time to socialize, we have brought in 4 specialists to lead roundtables to explore topics unique to HH.  All participants will be able to choose 2 topics and engage in small groups with our discussion leaders:

  • Transitions led by Sandra Cushner-Weinstein
  • Endocrine Issues led by Dr. Oliver Oatman
  • Family Dynamics led Carrin Brandt
  • Alternative Therapies (Diet & CBD) led by Dr. Amy Kao

Hope for HH will have an RN and volunteer supervised babysitting/care for HH children and adults with fun engaging activities in a safe environment. Siblings are welcome as well. 

If you are unable to travel due to financial hardship, a limited number of financial aid scholarships are being made available. Please apply here.  The deadline is Sept. 30

To help you plan your visit to the Family Forum, as well as AES (optional) and Washington DC, the Forum schedule is below. 

Don’t delay. Register in just two easy steps today:

  1. Register for the meeting and pay the registration fee here ASAP.
  2. Register for your hotel room. The hotel may be able to extend the rate for additional dates as availability permits. Given the popularity of travel to DC during the holiday season, rooms will fill fast. Guests are encouraged to book rooms NOW.  You can book your hotel, here