A Sister’s Story

A Sister’s Story

A Sister's Story by Annie Kane My name is Annie Kane, I’m 14 and I have two crazy siblings: my brother Charlie and my sister Gigi. Now, why would you refer to your siblings as crazy, Annie? Well, let me start by saying that from my own experience crazy does not mean...
Meet Mason

Meet Mason

Mason's Story It was a Tuesday, September 22nd 2015.  Mason was about 19 months old and we had run into the grocery store to pick up a few items.  He was babbling away, sitting right in front of me.  Next thing I knew he was no longer babbling, no longer clapping, no...
Endocrine Dysfunction – What does it mean?

Endocrine Dysfunction – What does it mean?

  Endocrine Dysfunction For most patients and families – the thought of HH surgery brings up lots of questions and concerns. Sometimes we aren’t sure what to ask our surgeon regarding all possible complications. With so much focus on seizure control, the discussion of...
Ketogenic Diet and HH

Ketogenic Diet and HH

Many families with HH and other refractory (difficult to treat) seizures search for options other than medications at some point in their treatment plan. For HH patients and many others – the anti-epileptic drugs (AEDs) are not only NOT helpful, but the side effects...