HH Treatments – How Successful Are They?

Gelastic seizures have been shown to begin in the HH lesion and removing (or otherwise damaging or ablating) the HH can cure seizures. Until recently, HH with epilepsy was considered not treatable, since surgery on the hypothalamus was considered too dangerous....
What is Executive Function?

What is Executive Function?

For many students with HH, starting a new school year can be very stressful. For many parents and caregivers, it can mean the drama associated with IEP meetings, 504 Plans, and dealing with new teachers - begins all over again. For many students, of all ages, with HH...
DC Family Forum | Meet The Speakers

DC Family Forum | Meet The Speakers

MEET OUR DC FAMILY FORUM SPEAKERS -  SANDRA CUSHNER-WEINSTEIN In this series, we will introduce you to the experts inside and outside of the HH community who will be presenting at the DC Family Forum on December 3rd. Please meet Sandra (Sandy) Cushner-Weinstein who...
HH Epilepsy | Achieving a Cure For HH

HH Epilepsy | Achieving a Cure For HH

  In June 2017, Epilepsia, The Official Journal of the International League Against Epilepsy (ILAE), published a Special Issue titled: Hypothalamic Hamartomas and Epilepsy. Sincere thanks to international experts and HH Medical Advisory Board members Drs. Jean...
Updated HH MRI Protocol

Updated HH MRI Protocol

Hypothalamic Hamartomas can be very difficult to diagnose for many reasons. Gelastic seizures may be misinterpreted as normal childlike behavior or laughter. They may also be diagnosed as colic, or acid reflux, and sometimes they may be thought to be autistic...