Launched New Content | Treatment Facilities

Launched New Content | Treatment Facilities

  Launched New Content | Treatment Facilities Hope for HH has recently updated our treatment facilities page here for the United States. HH (hypothalamic hamartoma) is a rare brain tumor and is best treated at an epilepsy specialty center. For patients newly diagnosed...
CDC Report Finds Epilepsy Remains Widespread

CDC Report Finds Epilepsy Remains Widespread

Report Finds Epilepsy Remains Widespread   The Division of Population Health of the Centers for Disease Control released a study titled “National & State Estimates of the Numbers of Adults and Children with Active Epilepsy – United States, 2015” which provides...

Meet Carson

Carson’s story Our story starts when I was 35 weeks pregnant with Carson. A routine ultrasound revealed that Carson had a very large cyst in his brain. Further follow up suggested that it was coming from the hypothalamus region. We delivered normally at 39 weeks,...
SUDEP Awareness Series | SUDEP Research

SUDEP Awareness Series | SUDEP Research

SUDEP Awareness Series | Part 3 - SUDEP Research In Part 3 in our SUDEP blog series - SUDEP Research, we'll provide details on the current research being done to find answers regarding the possible causes for SUDEP. Unfortunately, the causes of SUDEP are poorly...