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February 2017

Rare Disease Day

February 28
Rare Disease Day

Rare Disease DayIt's the ninth international Rare Disease Day where hundreds of patient organizations from countries and regions all over the world will hold awareness-raising activities based on the slogan Join us in making the voice of rare diseases heard. What will you do to get the word out about HH? Did you know there only 30,000 patients worldwide? Just 300 kids in the US? Virtual Event

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March 2017

11th Annual National Walk for Epilepsy

March 25
Washington Monument Grounds, 15th St. and Independence Ave., NW
Washington, DC 20007 United States
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11th Annual National Epilepsy Walk

11th Annual National Walk for EpilepsyWalk in DC or in your own town. In 2016 we had virtual walkers all around the world! Just be sure to walk in honor and memory of all our HH patients.March 25, 2017Washington DC or Virtual

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