Halloween and a Big Anniversary

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Halloween is a big day for us - not only is it a fun holiday for the kids, but it is the anniversary of one of Ezri's surgeries. It was Halloween of 2008 (a Friday to be exact), that Ezri had her first surgery (transcallosal approach) and it's hard to believe today marks 4 years. She was such a baby then at only 22 months old! As down as I get sometimes thinking how frequently sad Ezri is and what a hard time she has navigating social situations when all she wants is to fit in (and what does the future hold when we're barely holding on to regular kindergarten as it is now), I also have to think how far she's come even just from Halloween of last year. Though Trick or Treating last year was fun for Ezri (fun for the first time ever), there were still difficult aspects to it. We live in town homes in a very hilly area and many of the houses have wooden plank walkways with stairs and no railings as well as steep stairs up to the front porches or doors--difficult terrain for Ezri to say the least. These last 2 years we've gone with our neighborhood group of friends and their kids, and with Ezri moving slower than the energetic boys who live near us, we're always rounding up the rear (which is just fine). Last year, the difficulty with the terrain, having to ask strangers 'trick or treat,' and then having to choose a single piece of candy from a bowl of many (for some reason, making a choice of one item from many seems to stop Ezri in her tracks), all combined to make a difficult situation but she got through it and overall had quite good time despite it all. This year was a good bit better and I feel like more than anything it's from Ezri maturing and growing older. The issues she had before were very much related to seizure activity, mostly due to the anxiety of the different tasks being asked from her, and the difference this year is that all of those tasks she's become much more comfortable with. This is how the 'triggered' seizure activity is - anything that causes anxiety (any task that is difficult for Ezri to do) will cause an exaggerated outburst of sad, upset emotion (I can't do this! running the other way, etc. etc.). However, once Ezri has done the particular task enough times that she has become comfortable with it and it is 'easy' for her, there is no longer any problem, no longer any triggering of seizure activity.  It really is all about the anxiety. Halloween was memorably great this year and Ezri got a lot of candy to share with her parents (LOL). We have also switched Ezri back to Lexapro from a short trial stint with Prozac, and don't know if that's making the difference of things being on the upswing, but things definitely seem on the better side lately. The 2 weeks on Prozac were not the greatest, though they were surrounding the time slightly before and after her first Lupron shot in a year. In fact, her teacher sent a note home today saying how well she was doing and that she was invited to bring her Owl lunch bag back for lunch (we had to switch to a paper bag recently because Ezri was swinging her lunch bag at her friends and it was hurting them - not meanly, just inappropriate) and I have even heard her mention a few times her friends were playing with her, 'even when she has her seizures.' What I would give for things to stay this good...

Ezri, Owen, and Kes

Ezri, Owen, and Kes