Hope for HH was founded by a small group of dedicated parents who wanted to make sure other families touched by HH would benefit from the lessons many of us learned the hard way. There is no professional staff and the organization and website are maintained by volunteers. We welcome your financial support, as well as your time as a volunteer and your in-kind services.
Make a one-time donation, donate in honor of a loved one touched by HH, make a gift through your workplace giving campaign, organize a community fundraiser, donate services in-kind, purchase items from companies that donate a portion of proceeds generated through the sale to Hope for HH, or become a corporate partner.
As a volunteer run organization, we are always looking for volunteers with time and unique skills to share. If you have time and talent, we have a job for you!
Please send an email to volunteer@hopeforhh.org
There are many ways YOU can help Hope for HH educate your local community about hypothalamic hamartomas.
You can share the Hope For HH flyer with friends and family, your local doctors and hospitals, specialists, and teachers and educators.
Also, during November which is National Epilepsy Awareness Month you can ask your library, supermarket, coffee shop to let you dedicate their bulletin boards to HH and create a display. Email us your stories and photos form outreach you conduct in your community.
HH patients and caregivers each have their own journey from diagnosis to treatment to living their lives with HH.
To share your story, send an email to featuredfamily@hopeforhh.org and we will send you a featured family package.
Read the our family stories and be inspired.
Take a few minutes to complete an information form about your connection to HH.We will add you to our electronic mailing list to receive updates concerning HH. Hope for HH is collecting information about HH patients so we can track new diagnoses (which we suspect are underreported) and better tailor our services to meet the needs of those newly diagnosed and living with this condition.
Please download the form to stay connected to Hope for HH. The form can be filled out, saved and emailed to stayconnected@hopeforhh.org or if you prefer you can mail to: Hope for Hypothalamic Hamartomas, P. O. Box 721 Waddell, AZ 85355.
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