In the News

Neurological Comorbidities

Neurological Comorbidities and Hypothalamic Hamartomas (HH) Probably the most studied co...Read More >

Psychiatric and Behavior Symptoms

While other hypothalamic hamartoma (HH) comorbidities have been studied in more depth – the psy...Read More >

For Families

Getting a new diagnosis can be frightening and overwhelming. There is a whole new vocabulary you have never heard before, and not understanding it can mean confusion and further isolation. Start here to learn the basics and make informed decisions.


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For Professionals

Correctly diagnosing a hypothalamic hamartoma (HH) can be challenging for even the most experienced professional. Start here to gain a better understanding of the comorbidities associated with a hypothalamic hamartoma and the appropriate diagnostic tools available to providers today.


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For Donors

Your contributions are a critical part of our efforts to provide support to patients and families, educate medical professionals and therapists, and to encourage researchers to seek answers to this very complex condition. Start here to read more and support our on-going efforts.

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1 in 200k diagnosed worldwide

Often goes undiagnosed or misdiagnosed for years

Seizures commonly unresponsive to medication

Can result in cognitive and behavioral deterioration, learning disabilities, endocrine dysfunction and sleep disturbances

Hope for Hypothalamic Hamartomas
Hope for Hypothalamic HamartomasThursday, June 13th, 2019 at 5:08am

Hearing those words 'a rare brain tumor, a hypothalamic hamartoma' for the first time is devastating and overwhelming. Each of us as an individual with HH, a parent, caregiver, spouse, or friend of someone with HH knows that this HH journey is not linear, but...

Hope for Hypothalamic Hamartomas
Hope for Hypothalamic HamartomasThursday, June 13th, 2019 at 3:38am

Make sure to read today's blog on the Neurological Comorbidities often associated with HH.

#epilepsy #seizures #brain #tumor #complex #syndrome


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