HH patients and caregivers each have their own journey from diagnosis to treatment to living their lives with HH. Read the stories below and be inspired. To share your story, send an email to featuredfamily@hopeforhh.org and we will send you a featured family package.
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Jake Case (1982 - 2012) Jake peacefully passed away on September 26, 2012. He was loved by all who knew him. He is now in the loving arms of our Heavenly Father. We love and miss him.
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Grace Katherine Webster (2003 - 2011) After nearly 8 years of a courageous battle with a hypothalamic hamartoma, Grace passed away unexpectedly on December 11, 2011. Grace brought joy to the lives of those who loved her with her gentle smile and loving personality. Gracie loved going to school, making jewelry, doing puzzles and taking care of her baby dolls. She was a great big sister and simply wanted to make sure her sister and brother were happy every day. We were blessed to have her in our lives and she showed all who knew her that even in the tough times all of us can find moments of immense happiness and joy.
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