Hope for HH Newsletters

2017

January 2017 – Photos, videos and Shoefies

February 2017 – Just 3 days left to buy new hot HH shirts

March 2017 (#1) – Tune in to a Facebook Live Q&A on HH

March 2017 (#2) – Walk for HH on March 25th

April 2017 – Q1 Update -Hope Awards 2 Critical Research Grants

2016

June 2016 (#1) -Hope for HH Launches A NEW Website

June 2016 (#2) – What’s Hot in the Epilepsy Pipeline

June 2016 (#3) – HH Professional Symposium coming to London this Fall

July 2016 – Were You Treated in Australia for Your HH

August 2016 – Back to School Tools You Can Use

November 2016 (#1) – November is EPILEPSY AWARENESS MONTH

November 2016 (#2) – Your Acts of Hope Are Inspiring

November 2016 (#3) – Thanks for All YOU are Doing to Raise HOPE!

November 2016 (#4) – It’s Giving Tuesday – We Need Your Help!

December 2016 – Happy Holidays from your friends at HH

 

2015

February 2015 – Registry Sign Up, Family Conference, International Epilepsy Day, & Rare Disease Day

April 2015 – Tired of Feeling Alone?  Meet Other HH Families

August 2015 – BNI Study

October 2015 – 5 Questions, 5 minutes, $5 Starbucks

November 2015 – Giving Hope on #GivingTuesday

 

2014

November 2014 – Heartffelt Thanks

September 2014 – Hypothalamic Hamartomas getting national attention

 

2013

November 2013 – Giving Thanks & Full of HOPE

June 2013 – Do YOU Want to Know WHY Your Loved One Has HH? 

 

2012

December 2012 – Hope For HH Website Updated

November 2012 – Giving Thanks & Full of HOPE

August 2012 – Don’t miss the recent update to the Website

May 2012 – Launch of the Hope For HH Blog

January 2012 – Members of Hope for HH’s Board of Directors AES

 

2011

November 2011 – Thanks you & Now we need you more than ever

September 2011 – Texas Children’s Hospital used laser ablation surgery to treat hypothalamic hamartomas