Our Impact

Hope for Hypothalamic Hamartomas (www.hopeforhh.org) recently celebrated 10 years of service to HH patient and professional communities. Hope for HH’s creation as a 501c3 non-profit organization stemmed from each founding Board member’s struggle to obtain timely diagnosis, medically accurate information, and access to expert advice concerning prognosis, treatment and comorbidities. Bound by this rare brain tumor and complex epilepsy syndrome, the founding volunteers were determined to ensure that other families, newly diagnosed or managing HH over their lifetime would have a trustworthy, safe and welcoming place to turn for information and support.  We are excited to share with you the impact report (click to view) which reflects the many successes of the past and outlines the formidable goals we have set for the future!