PARTNERS



Hope for HH has formed strategic partnerships with leaders in epilepsy including government agencies, professional societies and disease based advocacy organizations. Through these partnerships, Hope for HH seeks; to ensure our patients have access to cutting edge information and support, to educate health professionals about HH and to ensure expeditious and correct diagnosis. We also hope to encourage young researchers to commit themselves to the study of HH and finally, to secure a place for HH treatment in national health policy discussions and funding decisions.

 

National Organization for Rare Disorders
National Organization for Rare Disorders
The National Organization for Rare Disorders (NORD), a 501(c)(3) organization, is a unique federation of voluntary health organizations dedicated to helping people with rare “orphan” diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.
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National Association of Epilepsy Centers
National Association of Epilepsy Centers
With the goal of no seizures and no side effects, the National Association of Epilepsy Centers strives to make high quality healthcare available and affordable for epilepsy patients across the country. NAEC is a non-profit 501c6 trade association with a membership of 190 specialized epilepsy centers in the United States.
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ICARE
ICARE
 Interagency Collaborative to Advance Research in Epilepsy Epilepsy research needs reach across the missions of multiple NIH Institutes and Centers and across many organizations outside the NIH. As the primary NIH Institute for epilepsy research, NINDS leads this working group, with broad representation from the NIH, other Federal agencies, and the research and patient advocacy communities. Annual meetings provide a forum for sharing information about ongoing and planned epilepsy research activities, highlighting advances and discussing needs and opportunities, and promoting increased collaboration toward common research goals.
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ILAE
ILAE
The International League Against Epilepsy (ILAE) was founded in 1909 and is an organization of more than 100 national chapters. The goals of the ILAE are: • To advance and disseminate knowledge about epilepsy • To promote research, education and training • To improve services and care for patients, especially by prevention, diagnosis and treatment
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Finding A Cure for Epilepsy & Seizures
Finding A Cure for Epilepsy & Seizures
 FACES (Finding A Cure for Epilepsy and Seizures) is affiliated with NYU Langone Medical Center and its Comprehensive Epilepsy Center. FACES funds research to improve epilepsy care, advances new therapies, and fosters a supportive community for children, families and caregivers who live with the challenges of epilepsy. The mission of FACES is to improve the quality of life for all those affected by epilepsy and seizures.
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American Epilepsy Society
American Epilepsy Society
The American Epilepsy Society promotes research and education for professionals dedicated to the prevention, treatment and cure of epilepsy.
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Epilepsy Leadership Council
Epilepsy Leadership Council
The Epilepsy Leadership Council (ELC) is a coalition of professional, governmental, and non-profit organizations representing patients with epilepsy and their families.  The mission is to serve as a mechanism through which organizations can work on shared goals and projects that will have a positive impact on the lives of individuals with epilepsy, focusing on those areas where working together produces greater efficiency and impact than working independently. 
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Epilepsy Foundation
Epilepsy Foundation
Epilepsy FoundationThe mission of the Epilepsy Foundation is to stop seizures and SUDEP, find a cure and overcome the challenges created by epilepsy through efforts including education, advocacy and research to accelerate ideas into therapies.
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CURE
CURE
CURE (Citizens United for Research in Epilepsy)Citizens United for Research in Epilepsy (CURE) is a nonprofit organization dedicated to finding a cure for the epilepsies by funding research and by increasing awareness of the prevalence and devastation of this disease.
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NINDS
NINDS
The mission of NINDS is to seek fundamental knowledge about the brain and nervous system and to use that knowledge to reduce the burden of neurological disease. To accomplish this goal the NINDS supports and conducts basic, translational, and clinical research on the normal and diseased nervous system.
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