Research Grant Awards
Hope for HH has awarded the following grants to support research and professional conferences to facilitate strategic discussions by HH and other researchers and clinicians.
To apply for a research grant, please send a Letter of Intent (LOI) to firstname.lastname@example.org outlining the hypothesis and aims and include a description of how research will benefit HH patients in 2 pages maximum. Grant requests are considered throughout the year in collaboration with Hope for HH’s Medical Advisory Board.
Target grant areas include causes of HH, therapies for HH, quality of life for individuals living with HH, epidemiology, and better data collection/management of individuals with HH. To support our research and other programs, please donate here.
Resting state functional MRI (rs-fMRI) and hypothalamic hamartomas
Location: Baylor College of Medicine, Texas Childrens Hospital, Barrow Neurological Institute
This grant was generously funded in collaboration with The Allalouf Family and the Mo-o-ving Thru the Mud for Landon fundraiser. We are also grateful for the admin support of our Hope for HH UK Affiliate.
Generating a Novel Rat Model of HH
Location: University of Utah, Anticonvulsant Drug Development Program
The search for new treatments for the seizures and cognitive deficits resulting from hypothalamic hamartomas has been hindered by a complete lack of animal models of this condition. The research proposed here hopes to facilitate therapy discovery by generating a new and innovative animal model of hypothalamic hamartoma.
Grant Funding: Hope for HH
3rd International Symposium on Hypothalamic Hamartomas
Location: London, UK
On September 16, Hope for HH collaborated with Hope for HH UK and the University College of London (UCL) to bring together 60 + researchers from around the world to
London, UK to set a strategic roadmap for HH. The meeting, titled the “3rd International Symposium on Hypothalamic Hamartomas,” had an ambitious agenda covering key research topics in HH including:
HH and epilepsy thought leaders gathered from 9 countries including Australia, France, German, Italy, United Kingdom, USA, Japan, China, and Switzerland and represented multi-specialty areas including basic scientists, endocrinology, epidemiology, neuropsychiatry, neuropsychology, imaging, neurology, neurosurgery, genetics, and patient management and care. Two exciting outcomes emerged from the meeting:
For a video recap of the meeting by Chair Dr. Helen Cross, click here.
Acorda Therapeutics, American Epilepsy Society, Barrow Foundation UK, Barrow Neurological Institute/Dignity Health, Cure Epilepsy, Elekta, Epilepsy Foundation, Focused Ultrasound Foundation, Hope for HH, Hope for HH UK, Leksall Gammaknife Society, Medtronic, Ronson Foundation, UCB
3rd International Workshop on Hypothalamic Hamartomas
Location: London, UK
On September 17, nine HH experts presented to UK & European doctors and nurses (clinicians) on best practices in HH diagnosis, treatment, management and care.
Each of the nine powerpoint presentations can be accessed on Hope for HH’s YouTube Channel here. Each presentation is available in FULL (long versions) or you can watch a QUICK INTERVIEWS for the key points.
This is the most up-to-date research on hot topics including laser ablation, imaging (FMRI) in diagnosing and targeting HH, behavioral and cognitive side effects of HH and more!
Grant Funding:Acorda Therapeutics, American Epilepsy Society, Barrow Foundation UK, Barrow Neurological Institute/Dignity Health, Cure Epilepsy, Elekta, Epilepsy Foundation, Focused Ultrasound Foundation, Hope for HH, Hope for HH UK, Leksall Gammaknife Society, Medtronic, Ronson Foundation, UCB
- 2013 – 2nd International Symposium on Hypothalamic Hamartomas, Marseille, France.
- 2013 – BNI Project funded (Dr. Wu)