by Erica Webster | Jul 9, 2019 | Blog, Featured News |
Hope for HH is co-sponsoring the 4th International Symposium on Hypothalamic Hamartomas - a professional symposium for HH investigators, clinicians and researchers – in Washington DC Sept. 12-14. The Symposium aims to identify gaps in understanding and opportunities...
by Lisa Soeby | Mar 15, 2018 | Blog, Featured News
Brain Injury and Cognitive Function March is Brain Injury Month and for many individuals with HH – the challenges of HH and those associated with a brain injury can be very similar. Fortunately, therapies designed to help individuals with a brain injury regain...
by Erica Webster | Feb 1, 2018 | Blog
A Sister's Story by Annie Kane My name is Annie Kane, I’m 14 and I have two crazy siblings: my brother Charlie and my sister Gigi. Now, why would you refer to your siblings as crazy, Annie? Well, let me start by saying that from my own experience crazy does not mean...
by Ilene Miller | Jan 30, 2017 | Blog
Dr. Isabel Heyman presented findings from a recent research study at The 3rd Annual HH International Symposium (London, Sept. 2016). In brief, Dr. Heyman analyzed 46 patients and found greater than 70% had behavioral/emotional disorders (including ADHD, anxiety, mood,...
