by Ilene Miller | Apr 10, 2017 | Blog, Featured News |
If We Can Create an Animal Model for HH We Will Significantly Improve Our Understanding of the Condition and the Best Interventions The search for new treatments for the seizures and cognitive deficits resulting from hypothalamic hamartomas has been hindered by a...
by Erica Webster | Feb 28, 2017 |
Rare Disease DayIt's the ninth international Rare Disease Day where hundreds of patient organizations from countries and regions all over the world will hold awareness-raising activities based on the slogan Join us in making the voice of rare diseases heard. What will...
by Ilene Miller | Feb 6, 2017 | Blog, Featured News |
Congrats to Hope for HH Medical Advisory Board members Drs. J. Helen Cross & Alexis Arzimanoglou, editors of the newly released publication, “Epilepsy Surgery In Children: Time is Critical.”The book includes contributions from other MAB members including Dr. Jack...
by Ilene Miller | Jan 30, 2017 | Blog |
Dr. Isabel Heyman presented findings from a recent research study at The 3rd Annual HH International Symposium (London, Sept. 2016). In brief, Dr. Heyman analyzed 46 patients and found greater than 70% had behavioral/emotional disorders (including ADHD, anxiety, mood,...
by Ilene Miller | Jan 24, 2017 | Blog |
The Rare Epilepsy Network (REN) is a consortium of partners committed to conducting research to improve outcomes of rare conditions associated with epilepsy and seizures. Together, we are committed to addressing the urgent health challenges of our rare epilepsy...
