Good Grief Batman!

Good Grief Batman!

Good Grief Batman! For a 5 year old boy recovering from HH surgery, what could be better than watching old Batman reruns on tv? Maybe a trip to the Batcave and a ride in the Batmobile? Impossible you say - not for kids living in Phoenix with challenging medical...
Meet Gavin

Meet Gavin

Gavin’s Story Gavin was born on time and had a normal delivery. From the time he was about two weeks old we noticed him doing a sort of grunting mixed with squinting his eyes, like he was in pain. We noticed it happening quite frequently so we brought it up to his...
Transition – To What?

Transition – To What?

For many individuals with HH, transitions can be difficult. It can be a challenge to transition from one activity to another, transition from one school to another, and it can be especially difficult to transition from adolescence to adulthood. Each of those could be...
Trouble Sleeping?

Trouble Sleeping?

 Hope for HH seeks opportunities to better understand the many facets of living with HH and epilepsy. We frequently share research projects that encourage patients and caregivers to answer questions that will lead to a better understanding of particular...