Meet Gavin

Meet Gavin

Gavin’s Story Gavin was born on time and had a normal delivery. From the time he was about two weeks old we noticed him doing a sort of grunting mixed with squinting his eyes, like he was in pain. We noticed it happening quite frequently so we brought it up to his...
Transition – To What?

Transition – To What?

For many individuals with HH, transitions can be difficult. It can be a challenge to transition from one activity to another, transition from one school to another, and it can be especially difficult to transition from adolescence to adulthood. Each of those could be...
Trouble Sleeping?

Trouble Sleeping?

 Hope for HH seeks opportunities to better understand the many facets of living with HH and epilepsy. We frequently share research projects that encourage patients and caregivers to answer questions that will lead to a better understanding of particular...
Executive “Dis”Function?

Executive “Dis”Function?

For many individuals with HH, one of the most difficult challenges in day-to-day living involves something professionals call Executive Functioning skills.Executive Function skills serve as the Command and Control center in the brain – they help you manage life tasks...