Meet Carson

Carson’s story Our story starts when I was 35 weeks pregnant with Carson. A routine ultrasound revealed that Carson had a very large cyst in his brain. Further follow up suggested that it was coming from the hypothalamus region. We delivered normally at 39 weeks,...
SUDEP Awareness Series | SUDEP Research

SUDEP Awareness Series | SUDEP Research

SUDEP Awareness Series | Part 3 - SUDEP Research In Part 3 in our SUDEP blog series - SUDEP Research, we'll provide details on the current research being done to find answers regarding the possible causes for SUDEP. Unfortunately, the causes of SUDEP are poorly...
SUDEP Awareness Series | What is SUDEP?

SUDEP Awareness Series | What is SUDEP?

  SUDEP Awareness Series | Part 1 - What is SUDEP? Hope for HH has been made aware of two young adults with HH that recently passed away. Both cases are suspected of being related to SUDEP (Sudden Unexpected Death in Epilepsy). For most HH families – SUDEP is an...
Meet Glen

Meet Glen

I am Glen B Schallman , 59 yrs old was diagnosed back on March 1, 2002, by Dr. Rekate at the age of 43 with a 2.5 cm Hypothalamic Hamartoma, and 2 other very rare brain conditions (Unilateral Polymicrogyria and Unilateral Schizenchephaly). About 2 months after being...