A Sister’s Story

A Sister’s Story

A Sister's Story by Annie Kane My name is Annie Kane, I’m 14 and I have two crazy siblings: my brother Charlie and my sister Gigi. Now, why would you refer to your siblings as crazy, Annie? Well, let me start by saying that from my own experience crazy does not mean...
Meet Mason

Meet Mason

Mason's Story It was a Tuesday, September 22nd 2015.  Mason was about 19 months old and we had run into the grocery store to pick up a few items.  He was babbling away, sitting right in front of me.  Next thing I knew he was no longer babbling, no longer clapping, no...
What is Executive Function?

What is Executive Function?

For many students with HH, starting a new school year can be very stressful. For many parents and caregivers, it can mean the drama associated with IEP meetings, 504 Plans, and dealing with new teachers - begins all over again. For many students, of all ages, with HH...
Good Grief Batman!

Good Grief Batman!

Good Grief Batman! For a 5 year old boy recovering from HH surgery, what could be better than watching old Batman reruns on tv? Maybe a trip to the Batcave and a ride in the Batmobile? Impossible you say - not for kids living in Phoenix with challenging medical...
Meet Gavin

Meet Gavin

Gavin’s Story Gavin was born on time and had a normal delivery. From the time he was about two weeks old we noticed him doing a sort of grunting mixed with squinting his eyes, like he was in pain. We noticed it happening quite frequently so we brought it up to his...