HH Comorbidity Survey – Initial Results In today’s blog on the initial HH Comorbidity Survey results, we are going to share the surgical treatment spectrum as reported by survey participants. This information was shared by individuals with HH or caregivers of...
This past week has been difficult for Ezri. Her typical array of behavioral/emotional/seizure-ish HH symptoms (crying spells, ‘bad’ feelings, compulsive urges to reach out and touch/hit/push people and/or pets) has definitely been stirred up and alongside...
In late August 2007, when Ezri was 8 ½ months old, a large mass was seen on Ezri’s MRI. We were rushed into an appointment with our hospital’s neurosurgeon a few days later. At this appointment we described the symptoms Ezri had been experiencing (the precocious...
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