by Lisa Soeby | Oct 16, 2017 | Blog
Gelastic seizures have been shown to begin in the HH lesion and removing (or otherwise damaging or ablating) the HH can cure seizures. Until recently, HH with epilepsy was considered not treatable, since surgery on the hypothalamus was considered too dangerous....
by HopeForHH | Jun 29, 2013 | Eli's Story, Follow-up care, HH Surgery, HopeforHH.org, hypothalamic hamartoma, Transcallosal surgery
As many of you know, I recently started nursing school at UNC. This past Wednesday, in what has come to be my favorite class thus far, we covered the urinary system and many of the pathological issues patients may have with it. One if the topics was Acute Renal...
by HopeForHH | Nov 15, 2012 | Ezri's Story, Featured Authors, HH Surgery, HopeforHH.org, hypothalamic hamartoma, Living with Hypothalamic Hamartoma, Medications, Post-surgery, Seizures, Side Effects
This past week has been difficult for Ezri. Her typical array of behavioral/emotional/seizure-ish HH symptoms (crying spells, ‘bad’ feelings, compulsive urges to reach out and touch/hit/push people and/or pets) has definitely been stirred up and alongside...
by HopeForHH | Jul 19, 2012 | Blog, Ezri's Story, Featured Authors, HH Surgery, HopeforHH.org, hypothalamic hamartoma, Living with Hypothalamic Hamartoma, Side Effects
Brain surgery rarely comes without side effects. Doctors sometimes touch on the risks of major ones, but there are all sorts of weird little things that often happen as a result of brain surgery which go unmentioned, yet remain forever changed. One of these...
by HopeForHH | Jun 6, 2012 | Blog, Featured Authors, HopeforHH.org, hypothalamic hamartoma, Megan, New Skills, Post-surgery |
I often find pleasure in the simple things. I can be feeling down in the dumps and all Nathan has to say to cheer me up a little is, “Thank you for making dinner, Sweetie. That was yummy.” Up until my surgery I was often overwhelmed just by following...
