Rare Disease Day

Rare Disease Day

Rare Disease DayIt's the ninth international Rare Disease Day where hundreds of patient organizations from countries and regions all over the world will hold awareness-raising activities based on the slogan Join us in making the voice of rare diseases heard. What will...
Feb 28 is Rare Disease Day – HH is Not Alone

Feb 28 is Rare Disease Day – HH is Not Alone

Feb 28 is Rare Disease Day – HH is Not AloneA disease, disorder, illness or condition affecting fewer than 200,000 people is considered RARE.There are 7,000 rare diseases and disorders.1 in 10 Americans or 30 Million people have a rare diseaseMore than ½ of people...