Cannabidiol (CBD) and HH

Cannabidiol (CBD) and HH

For approximately one third of people with epilepsy, their seizures cannot be controlled with the current regimen of anti-epileptic drugs (AEDs). Hypothalamic Hamartomas are no exception to this statistic. Studies are on-going to test the efficacy of cannabidiol, or...
Trouble Sleeping?

Trouble Sleeping?

 Hope for HH seeks opportunities to better understand the many facets of living with HH and epilepsy. We frequently share research projects that encourage patients and caregivers to answer questions that will lead to a better understanding of particular...
Feb 28 is Rare Disease Day – HH is Not Alone

Feb 28 is Rare Disease Day – HH is Not Alone

Feb 28 is Rare Disease Day – HH is Not AloneA disease, disorder, illness or condition affecting fewer than 200,000 people is considered RARE.There are 7,000 rare diseases and disorders.1 in 10 Americans or 30 Million people have a rare diseaseMore than ½ of people...