The following list of hospitals offer services for HH patients. Some hospitals offer comprehensive multi-disciplinary care, while others offer very specialized treatments. Hope for HH does not endorse any hospitals or doctors or represent that this is a complete list of hospitals providing HH treatment and care. Contact information is provided as a courtesy to HH patients. The Site and Content are for informational purposes only, and you assume full responsibility and risk for the appropriate use of information contained herein.
As you research hospitals and their services, we encourage you to ask each:
- If they are a full service epilepsy center?
- How many HH patients they have treated? And how recently?
- What treatments and services they provide?
- And whether multi-disciplinary treatment and post-treatment management is available?
Barrow Neurological Institute Hypothalamic Hamartoma Center at Phoenix Children’s Hospital and St. Joseph’s Hospital & Medical Center
Phoenix, AZ USA
Contact: Maggie Bobrowitz, RN
Phone: (602) 406-7585
Pediatric Website: Phoenix Childrens - Hypothalamic Hamartoma Center
Adult Website: Barrow Neurological Institute - Hypothalamic Hamartoma Center
Boston Children’s Epilepsy Center
Contact: Philip L. Pearl, MD
Coordinator: Kristen Davis
Phone: (617) 355-2413
Children’s Hospital of Michigan
Detroit, MI USA
Contact: Sarah Minarik, RN
Phone: (313) 745-7978
Cleveland Clinic - Center for Pediatric Neurology
Cleveland, OH USA
Contact: Elaine Wyllie, MD
Phone: (216) 445-8124
Fax: (216) 445-6813
Website: Hypothalamic Hamartoma Center
Hypothalamic Hamartoma Center of the Neuroscience Institute at Northwell Health
Epilepsy Center, University Hospital of Freiburg
New York University Epilepsy & Neurology Center
Royal Children’s Hospital
Seattle Children’s Hospital
Seattle, Washington USA
Phone: (206) 987-2078
Texas Children’s Hospital
Timone University Hospital
University of Toronto - Hospital for Sick Children
UCSF Medical Center
San Francisco, CA USA
Adult Epilepsy Surgery Program
400 Parnassus Ave, 8th Floor
San Francisco, CA 94143
Phone: (415) 353-2241
Pediatric Epilepsy Surgery Program
400 Parnassus Ave, 2nd Floor
San Francisco, CA 94143
Phone: (415) 353-2342
For more information or to find out if you are eligible for Visualase thermal ablation therapy, contact Epilepsy Nurse Specialist Lucinda Rinaldo at (415) 514-5759 or by e-mail at: Lucinda.Rinaldo@ucsf.edu.