The following list of hospitals offer services for HH patients. Some hospitals offer comprehensive multi-disciplinary care, while others offer very specialized treatments. Hope for HH does not endorse any hospitals or doctors or represent that this is a complete list of hospitals providing HH treatment and care. Contact information is provided as a courtesy to HH patients. The Site and Content are for informational purposes only, and you assume full responsibility and risk for the appropriate use of information contained herein.

 

As you research hospitals and their services, we encourage you to ask each:

  • If they are a full service epilepsy center?
  • How many HH patients they have treated? And how recently?
  • What treatments and services they provide?
  • And whether multi-disciplinary treatment and post-treatment management is available?
  • Barrow Neurological Institute Hypothalamic Hamartoma Center at Phoenix Children’s Hospital and St. Joseph’s Hospital & Medical Center

    • Phoenix, AZ USA

    Contact: Maggie Bobrowitz, RN

    Email: margaret.bobrowitz@dignityhealth.org

    Phone: (602) 406-7585

    Pediatric Website: Phoenix Childrens - Hypothalamic Hamartoma Center

    Adult Website: Barrow Neurological Institute - Hypothalamic Hamartoma Center

  • Children’s Hospital of Michigan

    • Detroit, MI USA

    Contact: Sarah Minarik, RN

    Email: SMinarik@dmc.org

    Phone: (313) 745-7978

  • Cleveland Clinic - Center for Pediatric Neurology

    • Cleveland, OH USA

    Contact: Elaine Wyllie, MD

    Phone: (216) 445-8124

    Fax: (216) 445-6813

    Website: Hypothalamic Hamartoma Center

  • Cushing Neuroscience Institute at North Shore LIJ Hypothalamic Hamartoma Center

    • Long Island, NY USA

    Contact: Kathy Murtagh

    Email: Kmurtagh@nshs.edu

    Phone: (516) 570-4400

    Website: Hypothalamic Hamartoma Center

  • Epilepsy Center, University Hospital of Freiburg

    • Freiburg, Germany

    Contact: Urte von Kurnatowski

    Email: urte.kurnatowski@uniklinik-freiburg.de

    Phone: 49 (0) 761/270-53660

    Website: Epilepsy Centre

  • New York University Epilepsy & Neurology Center

    • New York, NY USA

    Contact: Maria Taveras

    Email: Maria.Taveras@nyuec.com

    Phone: (646) 558-0869

    Website: Hypothalamic Hamartoma & Epilepsy Center

  • Royal Children’s Hospital

    • Melbourne, Australia

    Contact: Dr. A. Simon Harvey

    Email: epilepsy.program@rch.org.au

    Phone: +61 (0) 3 9345 5661

    Website: Children's Epilepsy Program

  • Texas Children’s Hospital

    • Houston, TX USA

    Contact: Truzella Benton

    Email: tebenton@texaschildrens.org

    Phone: (832) 822-0996

    Website: Texas Children's Hospital Main

  • Timone University Hospital

    • Marseille, France

    Contact: Vincent Laudun

    Email: Vincent.LAUDUN@ap-hm.fr

    Phone: 0033.4.91.38.70.58

    Website: Gamma Knife Unit

  • University of Toronto - Hospital for Sick Children

    • Toronto, Canada

    Contact: Julie Loy

    Email: julie.loy@sickkids.ca

    Phone: (416) 813-8133

    Website: Neurosurgery

    Website: Neurology