Register TODAY for the Virtual Hypothalamic Hamartoma Patient Conference
Hope For Hypothalamic Hamartomas is excited to host the international 2021 Virtual HH Patient Conference (October 1 & 2). Each day will be a half-day session starting at 9amPDT/12nEDT/5pmBST. We have scheduled these times to accommodate our international community.
The focus of the event will include providing education, outreach, and resources to our adult and pediatric community as well as discussing the challenges faced by families. The live presentations at this year’s event will include the following topics: focused ultrasound, mental health, the role of an endocrinologist, genetic research, executive function, and the family impacts of HH.
Early bird registration is $20.21 and ends tomorrow September 17th. Register here.
The Agenda
October 1st Day 1 – starts at 9amPDT/12nEDT/5pmBST
- 9:00 Welcome
- 9:10 Current State of Focused Ultrasound with a Contrast to Laser Ablation – Dr. John Ragheb
- 9:50 Mental Health and Hypothalamic Hamartoma: A Life-Span Approach – Dr. Isobel Heyman
- 10:30 Break
- 10:45 Hormonal Changes of Hypothalamic Hamartoma: The Role of an Endocrinologist – Dr. Kevin Yuen
- 11:25 Caring for the Caregiver – Dawn Herring, LMFT
- 12:05 Break
- 12:20 Breakout Sessions
- Pediatric Sleep, Stress and Mental Health – Dr. John Fulton
- Living with Chronic Stress – Dawn Herring, LMFT
- Service Dogs – Dog Training Elite and Kathy Jensen
- 1:00 Closing Remarks
October 2nd Day 2 – starts at 9amPDT/12nEDT/5pmBST
- 9:00 Welcome
- 9:10 Genetic Basics of HH: Ending the Diagnostic Journey – Dr. Michael Hildebrand
- 9:50 Practical Strategies to Support Memory and Executive Functions – Dr. Jennifer Wethe
- 10:30 Break
- 10:45 Beyond the Seizures: Family Impact of HH – Dr. Madison Berl
- 11:25 Break
- 11:40 Breakout Sessions
- Siblings and Family Dynamics – Dr. Madison Berl
- Adult- Discuss Sleep, Stress and Mental Health – Angela Donn
- Transition – Child to Adult – Lisa Soeby and Emma Kane
- 12:20 Closing Remarks
We will make our best effort to keep to this schedule to accommodate attendees and speakers.
Early bird registration is $20.21 and ends tomorrow September 17th. Register here.
