Meditation
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Meu nome é Renato e moro no Brasil com minha esposa e 2 filhos. Estou aqui para falar sobre meu filho mais velho, Guilherme. Nasceu em 2011. Junto com o HH, Guilherme também nasceu com polidactilia de ambas as mãos e de ambos os pés. Por muitas razões, digo que ele é realmente único. Levou…
Hola comunidad de HH, mi nombre es Calebe, tengo 9 años. Soy de João Pessoa, Paraíba, Brasil. Tengo un hamartoma hipotalámico extraño (HH). Me diagnosticaron hamartoma hipotalámico (HH) en 2018. Sin embargo, desde mis primeros años de vida sufrí los síntomas de esta enfermedad. Siempre he tenido convulsiones, pero me llevó tiempo determinar la causa de estas…
Olá, meu nome é Luis Paulo e eu sou o pai da pequena Sofia. Estou escrevendo este blog no Hope For HH e compartilho um pouco da história de HH da Sofia. Espero que isso ajude a divulgar informações sobre hamartomas hipotalâmicos e a organização e site Hope For HH. Sofia sofria de ataques de…
It has been awhile since I have written. I guess since Christopher’s laser ablation surgery he has been doing so well and there has not been much to say. He completed kindergarten this past school year without any learning problems. He has become a avid reader and continues to love being a football player. He…
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