Listen to the most up-to-date HH research from international experts from the 3rd International Symposium on HH in London Sept. 2016. The link for this will be to the playlist: 3rd International Hope For HH Symposium
Scientists Discuss New Approaches For Targeting And Treating Rare Brain Tumors At London Symposium BETHESDA, Md., Sept.14, 2016 /PRNewswire-iReach/ — Promising new research from scientists studying rare seizure disorders may ultimately lead to targeted drugs for potentially fatal neurological diseases in the same way that doctors are now using…….. Read more here
I am 20 years old and I live in Dublin California. I had brain surgery when I was 8 years old at Barrow Institute in Phoenix AZ. I had my hypothalamic hamartoma removed that time. The last seizure I had was on the way to the airport to go to Phoenix for my surgery. I…
Our little Jack was born on April 11, 2014, and came home from Hoboken Hospital with me the next evening to spend his first Saturday night meeting his big sister, Julia, who was almost two. He was perfectly ordinary and had no issues at all guzzling down his bottles and enjoying the attention. However, within…
Researchers at Columbia University, University of Melbourne and the Barrow Neurological Institute recently collaborated to exome sequence (a technique to sequence all the protein-coding genes in a genome) DNA from hypothalamic hamartoma tissue and blood. Preliminary results on 30 cases show a somatic mutation (present in brain tissue but not in blood) in over 40%…
Researchers at Columbia University, University of Melbourne and the Barrow Neurological Institute recently collaborated to exome sequence (a technique to sequence all the protein-coding genes in a genome) DNA from hypothalamic hamartoma tissue and blood. Preliminary results on 30 cases show a somatic mutation (present in brain tissue but not in blood) in over 40%…
Sue Jackson, Secretary UK, Wrexham Sue’s daughter Faith, was diagnosed during a routine antenatal scan, however, her seizures were not recognised until she was three months old. During this time she was continually in and out of status, due to the amount of seizure activity she was experiencing. Faith had surgery at the age…
It has been awhile since I have written. I guess since Christopher’s laser ablation surgery he has been doing so well and there has not been much to say. He completed kindergarten this past school year without any learning problems. He has become a avid reader and continues to love being a football player. He…
