Hope for Hypothalamic Hamartomas is a volunteer run nonprofit organization.

We rely on the generosity of our donors to provide individuals with HH and their families with the following:

  • 1:1 patient and caregiver support through phone and email
  • Patient and family support and education events
  • Surgical support bags provided to those undergoing surgical treatment
  • Virtual community events to connect individuals and families on this HH journey

In addition, we as an organization drive the following:

  • Education of healthcare professionals
  • International professional symposiums focused on hypothalamic hamartomas
  • Funding international HH specific research

To make an impact on the life of an individual today, please make a donation to Hope for HH.

 

Hope for Hypothalamic Hamartomas is a volunteer run nonprofit organization.

We rely on the generosity of our donors to provide individuals with HH and their families with the following:

  • 1:1 patient and caregiver support through phone and email
  • Patient and family support and education events
  • Surgical support bags provided to those going for surgical treatment
  • Virtual community events to connect individuals and families on this HH journey

In addition, we as an organization drive the following:

  • Education of healthcare professionals
  • International professional symposiums focused on hypothalamic hamartomas
  • Funding international HH specific research

To make an impact on the life of an individual today, please make a donation to Hope for HH.

 
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How to Donate

We accept donations online or by mail.

Make a Gift Online

Make a one-time contribution or enroll in monthly giving.

 

You can also donate In Honor Of or In Memory Of of someone special using this DONATION FORM and emailing it to info@hopeforhh.org.

Send a Check by Mail

Fill out our mail-in DONATION FORM and send your donation to:

Hope for Hypothalamic Hamartomas
PO Box 941
Eagle, ID 83616

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Hope Store

Hope For Hypothalamic Hamartoma merchandise can be purchased at our Zazzle store.  This is a wonderful way to contribute to Hope For HH and raise awareness of hypothalamic hamartomas.  Consider shopping today and making a lasting impact on those with HH.

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AmazonSmiles

AmazonSmile is a website operated by Amazon with the same products, prices, and shopping features as Amazon.com. The difference is that when you shop on AmazonSmile, the AmazonSmile Foundation will donate 0.5% of the purchase price of eligible products to the charitable organization of your choice. So whether it’s holiday shopping this winter or just a refill of paper towels, use Amazon Smile and list Hope for HH as your charity of choice. This is also great for Black Friday and Cyber Monday shopping too!

  1. Go to https://smile.amazon.com/ch/27-1433464
  2. Login with your Amazon account credentials
  3. Make sure to make to bookmark the https://smile.amazon.com/ URL in your browser
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Facebook Fundraising

A Facebook Fundraiser is a quick and easy way to raise awareness and funds to benefit Hope For Hypothalamic Hamartomas.

Setting up a fundraising campaign on Facebook will take you only a few minutes and is a great way to honor your HH hero, celebrate your birthday or other special events. Once the fundraiser is launched it can be shared with family and friends to encourage them to donate to help those with hypothalamic hamartomas.

Facebook waves fees for non-profits which means 100% of donations come directly to Hope For Hypothalamic Hamartomas!

  1. Go to https://www.facebook.com/HopeForHH/fundraisers
  2. Click the Raise Money button
  3. Enter amount for ‘How much money do you want to raise?’
  4. Enter a date for ‘When should your fundraiser end?’
  5. Enter a description in ‘What is the title of your fundraiser?’
  6. Share your story, your connection to HH and the Hope For Hypothalamic Hamartomas organization in the ‘Why are you raising money?’ section

Share with your Facebook friends and community.

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Corporate Matching Gifts

Many employers offer matching gift programs to encourage employees to contribute to charitable organizations like Hope for Hypothalamic Hamartomas. Your employer may double, or even triple, your gift at no additional cost to you. If you volunteer with us, your employer may also provide us with a grant as a way to recognize your ongoing support.

For processing of these employee matching programs, you’ll need our information:

Our Address

Hope for Hypothalamic Hamartomas
PO Box 941
Eagle, ID 83616

Our TaxID / EIN

27-1433464

Contact Person

Hope for HH Treasurer, Kimberly Ranson (info@hopeforhh.org)

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Stock Donations

The donations of stocks to Hope for Hypothalamic Hamartomas is a powerful way to impact our ability to serve those with this rare disease, fund research to improve the treatment, and someday a find a cure.  It is easy, safe, and cost-effective to transfer securities electronically into Hope for HH’s account.

Please notify our financial team in advance of stock transfers so that we can instruct our broker to accept delivery of your gift and acknowledge it properly for income tax purposes.

To donate, download Hope for HH’s stock gift form and fill it out.  It can either be email to info@hopeforhh.org or mailed to the following address.

Hope for Hypothalamic Hamartomas
Attn: Finance
PO Box 941
Eagle, ID 83616
Email: info@hopeforhh.org

Inform your broker that you would like to make a stock gift to Hope for Hypothalamic Hamartomas. Provide your broker with the form or the following information:

Broker: TBD
Account Name: TBD
Account Number: TBD
DTC Number: TBD 1
Hope for Hypothalamic Hamartomas Tax ID: 27-1433464

If you have any questions, please contact info@hopeforhh.org.

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Planned Giving

We all want the ability to continue to make a difference in the lives of those living with hypothalamic hamartomas.  You may want to make this impact as part of your will by identifying Hope for Hypothalamic Hamartomas as either a beneficiary or a contingent beneficiary of your will.

If you decide to include Hope for HH in your will, you may wish to discuss the inclusion of the following language with your attorney:

“I hereby devise and bequeath (insert a sum, percentage, or residue/remainder) to Hope for Hypothalamic Hamartomas, federal tax ID # 27-1433464 a non-profit corporation in Buckeye, Arizona for its unrestricted use and purpose.”

Decisions about legacy gifts are some of the most important choices you will ever make. We would be deeply honored if you chose to help create a future where no one has to suffer the debilitating effects of epilepsy.

Note: The information provided in this material is presented solely as general educational information and is not intended to be a substitute for professional estate planning or legal advice. As the laws regarding the validity and enforcement of wills or living trusts vary from state to state, you should seek the advice of your tax advisor, attorney, and/or financial planner to make certain a specific gift under consideration is compatible with your financial goals and needs and your estate plan. It is important to seek legal counsel in preparing these instruments. Any tax information contained in this document is not intended to be used, and cannot be used, to avoid any penalties imposed under the Internal Revenue Code.

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Local Fundraising

Organize an event in your community including bake sales, lemonade stands, car washes, walks, golf tournaments, theme days, concerts, and dinner parties. Send us pictures and information about your event and we’ll post your story to inspire others.