Angela is mother to a 13 year old child who was diagnosed with HH at age 3. After two laser ablation surgeries through Texas Children’s Hospital and the ketogenic diet for epilepsy through Johns Hopkins Hospital, her child became seizure free at age 5. She was so thankful for all the support of the HH community,…
Emma’s son Charlie was diagnosed with HH when he was 8, after years of misdiagnoses. As a result of her experience she joined Hope for HH as it was set up and has worked with the other Directors to support patients and caregivers, to spread awareness amongst the medical profession and to find a cure…