Community Corner
Join the Epilepsy Foundation and Hope for Hypothalamic Hamartomas on March 6 at 8:00 p.m. ET for a special Facebook Live, “When Laughing or Crying is a Seizure.”
Did you know that some seizures consist of sudden laughing or crying that the person has no control over? These seizures, a type of focal seizure, can cause numerous challenges and be associated with other problems too. They are usually caused by a lesion on an area of the brain called the hypothalamus. They often don’t respond to medicines well. Recently new approaches to treating these focal seizures caused by hypothalamic hamartomas (also called HH) have been developed.
Experts joining us for this Facebook Live will talk about what it’s like to have HH and what new approaches are available and are on the horizon.
Our Guest Experts
Lisa Soeby
Lisa is a co-founder and vice-president of Hope for Hypothalamic Hamartomas, a non-profit dedicated to providing information and support to people with HH. Hope for HH also works to promote research for early detection, improved treatment and a cure for people affected by HH. She has a son who had surgery and she has worked tirelessly to raise awareness about HH and the need for new therapies for people in the United States and internationally.
Nathan Fountain MD
Dr. Fountain is professor of neurology and director of the F.E. Dreifuss Comprehensive Epilepsy Center at the University of Virginia School of Medicine. He is past chair of the Epilepsy Foundation’s Professional Advisory Board and current president of the National Association of Epilepsy Centers. Dr. Fountain is leading a study about the use of focused ultrasound for the treatment of seizures in people with HH.
Like and follow the Epilepsy Foundation to watch – and ask questions – on March 6, 2017!
Look forward to joining you next week!
Patty Osborne Shafer RN, MN
Associate Editor/Community Manager, epilepsy.com
