For this week only (Today – Sat, Nov 26), Hope for HH will be offering our limited edition cups and water bottles to those individuals who are willing to Join Us and help make a difference for others with HH!
We will be drawing names from the list of individuals that complete and submit the form throughout the week, and send each winner their choice of a coffee travel mug, the water travel cup or a $10 Starbucks gift card.
Many individuals with HH and their caregivers have asked how they can help find a cure for HH. We understand not everyone has the time to run a fundraiser for Hope for HH, but there are so many other ways to support our efforts.
One of the biggest ways is to log on to our website and share your information in our Join Us form! It is that simple! It is a short form and your information is NEVER shared with any other organization. It does allow us to consolidate information such as – common but unexplained behaviors and learning challenges, unusual side effects, and challenges that impact a significant number of patients. Armed with this data, we as an advocacy organization, can make suggestions to both clinical professionals and researchers on potential areas of study and/or focus.