News, Research & Resources


To stay abreast of what’s happening in Hypothalamic Hamartomas treatment and care, check our “In The News” and “HH Newsletters.  “In the News” is a compilation of press articles sharing HH stories from all around the world. Our Newsletter is our in house electronic newsletter sharing information about innovations in treatment and research, the foundation and our informational and educational programs, events, and more.  To join, click here.



Hope for HH is dedicated to funding cutting edge research on Hypothalamic Hamartomas. Our focus is on research projects that will help to understand the cause of HH, develop new treatments, and improve the quality of life for those living with this rare brain tumor and seizure disorder. We also support symposiums that bring together thought leaders in HH. In addition to awarding research grants and supporting conferences, Hope for HH also encourages our patient and caregiver community to participate in research including registries and clinical trials. Finally, HH tracks articles published on HH and related topics to keep our finger on the pulse of current research and innovations. 

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This website was built and is maintained by HH volunteers. We consolidated all of the resources we have found helpful through each of our respective journeys with this condition. Here you will find: