The Hope For Hypothalamic Hamartomas newsletter is our way of sharing information about innovations in treatment and research, support programs and events as well as current educational and awareness initiatives.

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Hope for HH is dedicated to funding cutting edge research on Hypothalamic Hamartomas. Our focus is on research projects that will help to understand the cause of HH, develop new treatments, and improve the quality of life for those living with this rare brain tumor and seizure disorder. We also support symposiums that bring together thought leaders in HH. In addition to awarding research grants and supporting conferences, Hope for HH also encourages our patient and caregiver community to participate in research including registries and clinical trials. Finally, HH tracks articles published on HH and related topics to keep our finger on the pulse of current research and innovations.

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This website was built and is maintained by HH volunteers. We consolidated all of the resources we have found helpful through each of our respective journeys with this condition.

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