Hope For HH Newsletters
Hope for HH Newsletters provide information and current news on research, our programs, the grants we award, and upcoming fundraisers & special events. Sign up to receive our e-Newsletters, Grant Award Announcements, Research Updates and information on upcoming fundraising events.
2020
January 2020 – Research News: HH and Genetics
February 2020 – #ShowYourStripes What will be your impact on #RareDiseaseDay?
March 2020 – COVID-19 Information and Resources
April 2020 – A Time for Reflection – 10 years of Impact
May 2020 #1 – International HH Research and Awareness
May 2020 #2 – Help drive future HH research and comprehensive care!
August 2020 – Summer 2020: Hope For HH News & Upcoming Events
September 2020 #1 – Celebrating International HH Awareness Month
September 2020 #2 – Clinical Trials, Canadian Treatment, and International Awareness
2019
January 2019 – Happy 2019 to the HH Community!
March 2019 – HH Caregivers: Are You Taking Care of Yourself?
April 2019 – Don’t Miss 3 Part Caregiving Webinar – The Toll of Caregiving
May 2019 – What are Your HH Comorbidities?
June 2019 – Do You Have HH Psychiatric & Behavior Comorbidities?
July 2019 – How Does HH Impact You?
August 2019 #1 – Comorbidity Survey
August 2019 #2 – Questions about IEPs, Rescue Medications
October 2019 – TODAY is SUDEP Action Day – are You SUDEP AWARE?
November 2019 – Grateful for the continued generosity of our community
2018
February 2018 – Will You Get A Surprise In the Mail from Hope?
April 2018 – Walk Where You Are for Hope?
June 2018 – Where Were You Treated for HH?
August 2018 – Last Chance to Sign Up for the REN is tomorrow!
October 2018 (#1) – REN Data on HH Published in The Journal of Pediatrics
2017
January 2017 – Photos, videos and Shoefies
February 2017 – Just 3 days left to buy new hot HH shirts
March 2017 (#1) – Tune in to a Facebook Live Q&A on HH
March 2017 (#2) – Walk for HH on March 25th
April 2017 – Q1 Update -Hope Awards 2 Critical Research Grants
July 2017 – Are You Registered for Two Great HH Programs?
August 2017 – DC 5ks & Family Forum
September 2017 – Grab Your Sneakers
October 2017 – How Can I Get Cool HH T-shirts?
November 2017 (#1) – Don’t Delay Register for DC FF
November 2017 (#2) – Year End 2017 – Will you Help HH Reach Hundreds?
November 2017 (#3) – #GivingTuesday – Please give to Hope For Hypothalamic Hamartomas?
2016
June 2016 (#1) -Hope for HH Launches A NEW Website
June 2016 (#2) – What’s Hot in the Epilepsy Pipeline
June 2016 (#3) – HH Professional Symposium coming to London this Fall
July 2016 – Were You Treated in Australia for Your HH
August 2016 – Back to School Tools You Can Use
November 2016 (#1) – November is EPILEPSY AWARENESS MONTH
November 2016 (#2) – Your Acts of Hope Are Inspiring
November 2016 (#3) – Thanks for All YOU are Doing to Raise HOPE!
November 2016 (#4) – It’s Giving Tuesday – We Need Your Help!