For many students with HH, starting a new school year can be very stressful. For many parents and caregivers, it can mean the drama associated with IEP meetings, 504 Plans, and dealing with new teachers – begins all over again. For many students, of all ages,...
We asked our patients recently and here’s what they shared… “When I had seizures as a kid used to get a feeling that went from my head to my gut. I used to feel them coming on and tell my parents.” “I didn’t feel anything in my stomach, but...
No matter what country you reside in, it is important to educate yourself about the process to get the BEST care. In the United Kingdom, Great Ormond Street Hospital for Children (GOSH) has a team of mental health professionals with expertise in Hypothalamic...
Hope for HH seeks opportunities to better understand the many facets of living with HH and epilepsy. We frequently share research projects that encourage patients and caregivers to answer questions that will lead to a better understanding of particular...
For many individuals with HH, one of the most difficult challenges in day-to-day living involves something professionals call Executive Functioning skills.Executive Function skills serve as the Command and Control center in the brain – they help you manage life tasks...
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