In honor of International Epilepsy Day, an event created to promote epilepsy awareness in more than 120 countries, Hope for HH would like to highlight and thank our own international support community! In the last 5 years the Hope for HH Medical Advisory Board (MAB) has grown from a mostly US based group of…
March 25th is the National Walk for Epilepsy in Washington DC This annual walk has very special significance for Hope for HH – it is where two of our Founders – Ilene Miller and Lisa Soeby met to walk with their boys to raise awareness about HH and ended up committing to starting a Foundation!…
As Epilepsy Awareness Month draws to a close, all of us here at Hope for HH want to thank everyone that helped us get the word out and raise awareness in November. It was a great response! You engaged through social media, initiated the important conversations with professionals, and shared your thoughts and experiences with…
For this week only (Today – Sat, Nov 26), Hope for HH will be offering our limited edition cups and water bottles to those individuals who are willing to Join Us and help make a difference for others with HH! We will be drawing names from the list of individuals that complete and submit the…
I have a confession to make, we are a bit addicted to Amazon in our house and we use it for dog food, gifts, clothes, household goods – really you name it. AmazonSmile is a website operated by Amazon with the same products, prices, and shopping features as Amazon.com. The difference is that when you shop…
It has been awhile since I have written. I guess since Christopher’s laser ablation surgery he has been doing so well and there has not been much to say. He completed kindergarten this past school year without any learning problems. He has become a avid reader and continues to love being a football player. He…
