As we continue through International Hypothalamic Hamartoma Awareness month we are sharing the ‘Why’ of the Hope For HH board members. They were asked to share their reasons for being part of this organization and for generously volunteering their time and...
During our annual board training, each board member was asked to describe their ‘Why’. Why do you support Hope For HH? Why do you volunteer your time? Why is Hope For HH important to you and your family? Why do you feel it is important to be an active...
Our team recently participated in board training and a mid-year strategic planning session. Due to COVID-19, both of these sessions were held virtually rather than in person as we had hoped. Like most organizations, our small nonprofit is feeling the impact of this...
The following post was published on the Barrow Hypothalamic Hamartoma blog by Maggie Bobrowitz on May 30, 2014. We want to share with you the difference one of our community has made in all our lives. Compassion has been defined as the feeling that arises when you are...
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