HH Comorbidity Survey – Initial Results Neurological issues associated with hypothalamic hamartomas have been well studied in the last 10 plus years. However, when it comes to the cognitive challenges experienced by individuals with HH, the number of studies is...
No matter what country you reside in, it is important to educate yourself about the process to get the BEST care. In the United Kingdom, Great Ormond Street Hospital for Children (GOSH) has a team of mental health professionals with expertise in Hypothalamic...
Dr. Isabel Heyman presented findings from a recent research study at The 3rd Annual HH International Symposium (London, Sept. 2016). In brief, Dr. Heyman analyzed 46 patients and found greater than 70% had behavioral/emotional disorders (including ADHD, anxiety, mood,...
This year has really flown by for our entire family. Up until now, Ezri has done fantastically in her first grade class. This is not to say she’s functioning at a ‘normal’ level, but she continues to make progress with her school work and grow...
It was the idea of Faiths neurologist to refer us to CAMHS, and we have been waiting a few months for the appointment. The day of the appointment finally arrived and Faith was feeling poorly. Desperate not to lose the appointment I rang the clinic to check whether I...
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