Tag Archives: rage seizures

Jan302017

New Research on Behavioral, Emotional & Cognitive Profiles in Pediatric Hypothalamic Hamartoma Syndrome

BlogBy Ilene Miller January 30, 2017

Dr. Isabel Heyman presented findings from a recent research study at The 3rd Annual HH International Symposium (London, Sept. 2016). In brief, Dr. Heyman analyzed 46 patients and found greater than 70% had behavioral/emotional disorders (including ADHD, anxiety, mood, etc) and 46% exhibited rage/aggression. 50% of patients also had cognition issues from mild to severe.…

Jan292015

Meet Grace (2003 – 2011)

Meet Other FamiliesBy Erica Webster January 29, 2015

Grace Katherine Webster (2003 – 2011) Perry and I had married in early 2002 with the hopes of beginning our family immediately. Unfortunately, we experienced two back to back miscarriages in 2002 and we felt the dreams of a family were slipping away from us. We decided to seek the help of a fertility specialist…

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