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Exciting Research Grant Update | Dr. Varina Boerwinkle

Exciting Research Grant Update | Dr. Varina Boerwinkle

by Lisa Soeby | Apr 14, 2017 | Blog, Featured News

Hope for HH is excited to update everyone on the work Dr. Varina Boerwinkle, from Texas Children’s Hospital (TCH), is doing in her research to study resting state functional MRI (rs-fMRI) and Hypothalamic hamartomas. Initially, Dr. Boerwinkle performed the first ever...
Meet Mattias

Meet Mattias

by Erica Webster | Apr 15, 2016 | Homepage, Living with Hypothalamic Hamartoma, Meet Other Families

Mattias is a truly happy 3 ½ year old boy and our only child. He has an infectious smile and a passion for life. Trains, cars and cats are some of the many things that interest him.September 22nd, 2012 Mattias was taken to the emergency room at the Children’s hospital...

Christopher’s Story

by Erica Webster | Sep 12, 2013 | Christopher's Story, Education, Epilepsy Awareness, Featured Authors, HopeforHH.org, hypothalamic hamartoma, Living with Hypothalamic Hamartoma | 0 comments

A year of reflect..My name is Traci and our family is from N.J. My husband Chris and I have five children: one girl and four boys, the youngest are twins. Cayden was was diagnosed with moderate to severe apraxia at age 3. He has been working so hard to overcome his...
The Next Step for Eli

The Next Step for Eli

by Erica Webster | Aug 24, 2013 | Coping with Seizures, Eli's Story, Featured Authors, HH Surgery, HopeforHH.org, hypothalamic hamartoma, Laser Surgery, Living with Hypothalamic Hamartoma | 0 comments

Eli had his 3 month post laser ablation surgery check-up in Houston. Our doctor in Baltimore ordered a 48 hour video EEG over concerns during his recovery process. Eli is having myoclonic seizures daily- which is like a twitch similar to “sleep jerks” that...
Recovery Week for Eli

Recovery Week for Eli

by Erica Webster | May 27, 2013 | Eli's Story, Featured Authors, HH Surgery, HopeforHH.org, hypothalamic hamartoma, Laser Surgery | 0 comments

Eli was out of the hospital the next day after his laser ablation surgery. I felt weird that after such a major surgery, to the deepest part of the brain, wouldn’t require more time in the hospital. But he seemed okay, looked fine, and I heard similar positive...
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