Hope for HH is excited to update everyone on the work Dr. Varina Boerwinkle, from Texas Children’s Hospital (TCH), is doing in her research to study resting state functional MRI (rs-fMRI) and Hypothalamic hamartomas. Initially, Dr. Boerwinkle performed the first ever...
Mattias is a truly happy 3 ½ year old boy and our only child. He has an infectious smile and a passion for life. Trains, cars and cats are some of the many things that interest him.September 22nd, 2012 Mattias was taken to the emergency room at the Children’s hospital...
A year of reflect..My name is Traci and our family is from N.J. My husband Chris and I have five children: one girl and four boys, the youngest are twins. Cayden was was diagnosed with moderate to severe apraxia at age 3. He has been working so hard to overcome his...
Eli had his 3 month post laser ablation surgery check-up in Houston. Our doctor in Baltimore ordered a 48 hour video EEG over concerns during his recovery process. Eli is having myoclonic seizures daily- which is like a twitch similar to “sleep jerks” that...
Eli was out of the hospital the next day after his laser ablation surgery. I felt weird that after such a major surgery, to the deepest part of the brain, wouldn’t require more time in the hospital. But he seemed okay, looked fine, and I heard similar positive...
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