Treatment Facilities
The following list of hospitals offer services for HH patients. Some hospitals offer comprehensive multi-disciplinary care, while others offer very specialized treatments. Hope for HH does not endorse any hospitals or doctors or represent that this is a complete list of hospitals providing HH treatment and care. Contact information is provided as a courtesy to HH patients. The Site and Content are for informational purposes only, and you assume full responsibility and risk for the appropriate use of information contained herein.
As you research hospitals and their services, we encourage you to ask each:
- If they are a full service epilepsy center?
- How many HH patients they have treated? And how recently?
- What treatments and services they provide?
- And whether multi-disciplinary treatment and post-treatment management is available?
Barrow Neurological Institute Hypothalamic Hamartoma Center at Phoenix Children’s Hospital
Phoenix, AZ USA
Contact: Diana LaRocque, RN, BSN, CPN
Email: dlarocque@phoenixchildrens.com
Address:
1919 E. Thomas Road
Ambulatory Bldg., 4th Floor
Phoenix, AZ 85016
Phone: (602) 933-0468
Website: Hypothalamic Hamartoma Center
Barrow Neurological Institute Hypothalamic Hamartoma Center at St. Joseph’s Hospital & Medical Center
Phoenix, AZ USA
Contact: Maggie Bobrowitz, RN, MBA
Email: margaret.bobrowitz@dignityhealth.org
Address:
350 W. Thomas Road
5th Floor, Neuroscience Tower
Phoenix, AZ 85013
Phone: (602) 406-7585
Website: Hypothalamic Hamartoma Center
Boston Children’s Epilepsy Center
Boston, Massachusetts
Contact: Philip L. Pearl, MD
Coordinator: Kristen Davis
Phone: (617) 355-2413
Email: Phillip.Pearl@childrens.harvard.edu
Email: Kristen.Davis@childrens.harvard.edu
Website: bostonchildrens.org/epilepsy
Children’s Hospital of Michigan
Detroit, MI USA
Contact: Sarah Minarik, RN
Email: SMinarik@dmc.org
Phone: (313) 745-7978
Cleveland Clinic – Center for Pediatric Neurology
Cleveland, OH USA
Contact: Elaine Wyllie, MD
Phone: (216) 445-8124
Fax: (216) 445-6813
Website: Hypothalamic Hamartoma Center
Hypothalamic Hamartoma Center of the Neuroscience Institute at Northwell Health
Long Island, NY USA
Contact: Ashesh Mehta, MD, PhD
Email: amehta@northwell.edu
Phone: (516) 325-7061
Website: Hypothalamic Hamartoma Center
Epilepsy Center, University Hospital of Freiburg
Freiburg, Germany
Contact: Urte von Kurnatowski
Email: urte.kurnatowski@uniklinik-freiburg.de
Phone: 49 (0) 761/270-53660
Website: Epilepsy Centre
New York University Epilepsy & Neurology Center
New York, NY USA
Contact: Maria Taveras
Email: Maria.Taveras@nyuec.com
Phone: (646) 558-0869
Website: Hypothalamic Hamartoma & Epilepsy Center
Royal Children’s Hospital
Melbourne, Australia
Contact: Dr. A. Simon Harvey
Email: epilepsy.program@rch.org.au
Phone: +61 (0) 3 9345 5661
Website: Children’s Epilepsy Program
Seattle Children’s Hospital
Seattle, Washington USA
Phone: (206) 987-2078
Website: http://www.seattlechildrens.org/clinics-programs/epilepsy/your-care-team/
Texas Children’s Hospital
Houston, TX USA
Contact: Truzella Benton
Email: tebenton@texaschildrens.org
Phone: (832) 822-0996
Website: Texas Children’s Hospital Main
Timone University Hospital
Marseille, France
Contact: Vincent Laudun
Email: Vincent.LAUDUN@ap-hm.fr
Phone: 0033.4.91.38.70.58
Website: Gamma Knife Unit
University of Toronto – Hospital for Sick Children
Toronto, Canada
Contact: TBD
Email: TBD
Phone: TBD
Website: Neurosurgery
Website: Neurology
UCSF Medical Center
San Francisco, CA USA
Adult Epilepsy Surgery Program
400 Parnassus Ave, 8th Floor
San Francisco, CA 94143
Phone: (415) 353-2241
Pediatric Epilepsy Surgery Program
400 Parnassus Ave, 2nd Floor
San Francisco, CA 94143
Phone: (415) 353-2342
For more information or to find out if you are eligible for Visualase thermal ablation therapy, contact Epilepsy Nurse Specialist Lucinda Rinaldo at (415) 514-5759 or by e-mail at: Lucinda.Rinaldo@ucsf.edu.
Website: http://www.ucsfhealth.org/clinics/epilepsy_center/index.html