As Epilepsy Awareness Month draws to a close, all of us here at Hope for HH want to thank everyone that helped us get the word out and raise awareness in November. It was a great response! You engaged through social media, initiated the important conversations with professionals, and shared your thoughts and experiences with us through your posts!
As we begin to strategize and prioritize our programs for 2017, we would love to hear from you – the patients and families. What you would like to see more of in 2017?
Our mission is to support patients and families through our on-going programs:
- Provide up-to-date information and support through our website, family conferences, family support funds, epilepsy awareness walks, downloadable forms for caregivers to share, and social media outreach.
- Encourage research and collaboration among international scientists, clinicians and thought leaders through the HH International Symposium.
- Board members of Hope for HH present at national medical conferences and attend the American Epilepsy Society Meeting each year to advocate for HH patients and families.
Every year we try to build on the significant advances that have been made – but resources are limited and we are all volunteers at Hope for HH. So how can we best use the resources we have to make a difference for YOU in 2017?
Are there printable resources you wish you had to share with others? What topics would they cover? Would you want to attend local support group meetings, if they were available?