We’ve compiled a list of helpful links to other online resources to help family members and caregivers find additional support.

  • CADRE, www.directionservice.org/cadre, the National Center on Dispute Resolution, encourages the use of mediation and other collaborative strategies to resolve disagreements about special education and early intervention programs.
  • Center for Law and Education, www.cleweb.org, strives to make the right of all students to quality education a reality throughout the nation and to help enable communities to address their own public education problems effectively, with an emphasis on assistance to low-income students and communities. For more than forty years, the Center for Law and Education has worked to bring about school- and district-wide change across the country in order to improve educational outcomes, particularly for low-income students. Legal information for parents and advocates about educational rights.
  • Federal Agencies and Resources, www.disabilityinfo.gov, connects people with disabilities, their family members, veterans, caregivers, employers, service providers and others with the resources they need to ensure that people with disabilities can fully participate in the workplace and in their communities.
  • Parent Advocacy Coalition for Educational Rights (PACER), www.pacer.org, is to expand opportunities and enhance the quality of life of children and young adults with disabilities and their families, based on the concept of parents helping parents.
  • Adrenal Insufficiency Coalition – https://www.adrenalinsufficiency.org/ – Our mission at the Adrenal Insufficiency Coalition (AIC) is to improve care for adrenal insufficiency patients through education and empowerment.
  • Endocrine Society – https://www.endocrine.org/improving-practice/patient-resources – The Endocrine Society is the world’s oldest, largest, and most active organization devoted to research on hormones and the clinical practice of endocrinology.
  • Magic Foundation – https://www.magicfoundation.org/ – The MAGIC Foundation is a charitable non-profit organization created to provide support services for the families of children afflicted with a wide variety of chronic and/or critical disorders, syndromes and diseases that affect a child’s growth.
  • Pituitary Network Association – https://pituitary.org/ – The PNA is an international non-profit organization for patients with pituitary tumors and disorders, their families, loved ones, and the physicians and health care providers who treat them.
  • Federal Agencies and Resources, www.disabilityinfo.gov, connects people with disabilities, their family members, veterans, caregivers, employers, service providers and others with the resources they need to ensure that people with disabilities can fully participate in the workplace and in their communities.
  • Financial Help, www.ssa.gov, learn about eligibility rules and apply online for Social Security, Social Security Disability Insurance, Medicare and Medicaid.
  • Centers for Disease Control and Prevention, www.cdc.gov/epilepsy to effectively address public health issues related to epilepsy to improve the health of people living with epilepsy, especially those at greater risk for health disparities; improve their quality of life; and decrease the stigma associated with this condition.
  • Epilepsy Phenome/Genome Project, www.epgp.org, is a research study funded by the National Institutes of Neurological Disorders and Stroke. The goals are to better understand what causes epilepsy, why some families have several people with epilepsy, and how we can better predict which anti-seizure medications (or no medication) will work best for an individual.
  • Federal Agencies and Resources, www.disabilityinfo.gov, connects people with disabilities, their family members, veterans, caregivers, employers, service providers and others with the resources they need to ensure that people with disabilities can fully participate in the workplace and in their communities.
  • National Institute of Health, www.nih.gov, is a part of the U.S. Department of Health and Human Services and is the primary Federal agency for conducting and supporting medical research. Helping to lead the way toward important medical discoveries that improve people’s health and save lives, NIH scientists investigate ways to prevent disease as well as the causes, treatments, and even cures for common and rare diseases. Composed of 27 Institutes and Centers, the NIH provides leadership and financial support to researchers in every state and throughout the world.
  • National Institute of Neurological Disorders and Stroke, www.ninds.nih.gov/research/epilepsyweb/, is one of the 27 Institutes and Centers that are a part of NIH (National Institute of Health). NINDS is where research for epilepsy is conducted at the federal level.
  • Air Charity Network, www.aircharitynetwork.org. Air Charity Network™ (ACN) provides access for people in need seeking free air transportation to specialized health care facilities or distant destinations due to family, community or national crisis.
  • American Airlines Operation Lift-Off, www.operationliftoff.com. Their mission is to provide hope for courageous and frightened children with air transportation for a treatment trip. It is our goal to gain the resources necessary to provide air transportation for children with a life threatening illness. All documentation needed is on the webpage under Services/ Request a Trip.
  • Miracle Flights for Kids, www.miracleflights.org. Helping families overcome financial obstacles by flying their seriously ill children to receive proper medical care and to get second opinions.
  • Corporate Angel Network, www.corpangelnetwork.org. Provides free air transportation for cancer patients traveling to and from recognized treatment centers in the US without regard to their financial resources. Arranges for patients to use empty seats on corporate aircraft operating on business flights. (540 major corporate jets)
  • Mercy Medical Airlift (MMA), www.mercymedical.org. A non-profit organization dedicated to serving people in situations of compelling human need through the provision of charitable air transportation. MMA is totally supported through charitable giving and the services of volunteer pilots and office assistants.
  • National Patient Travel Center, www.PatientTravel.org. Provides information about all forms of charitable, long-distance medical air transportation and provides referrals to all appropriate sources of help available in the national charitable medical air transportation network.
  • Southwest Airlines, www.southwest.com. Due to a significant increase in demand for tickets, Southwest Airlines has partnered with hospitals that have registered to participate in the medical transportation program. Each hospital is given tickets that they manage, with their own request requirements. Click on the link provided in the list for the procedures established by that hospital.
  • SeizureTracker, https://www.seizuretracker.com is dedicated to providing people living with epilepsy and their doctors with free comprehensive tools to help understand relationships between seizure activity and anti-epileptic medications.