Executive Board and Directors
In 2005, Erica’s fourteen month old daughter, Grace, began to show the first signs of having a hypothalamic hamartoma when her pediatrician diagnosed her with precocious puberty after finding blood…
Lisa’s son CJ was diagnosed with an HH in 1997, when he was just 3 months old. The process of getting doctors to listen and ultimately getting a correct diagnosis…
Kimberly is the proud mother of three children. Her middle child, Colin, was born with an extra pinky finger, some abnormal toe formations, and an “unusual cry”. At 4 months…
Michelle is a proud mother of three young children. Her son, Jaxon was first noticed to have some abnormalities in utero. Jaxon’s accurate diagnosis was extremely difficult to get. He…
Board Members
Angela is mother to a 13 year old child who was diagnosed with HH at age 3. After two laser ablation surgeries through Texas Children’s Hospital and the ketogenic diet for…
Emma’s son Charlie was diagnosed with HH when he was 8, after years of misdiagnoses. As a result of her experience she joined Hope for HH as it was set…