The comorbidities associated with hypothalamic hamartoma syndrome vary from individual to individual. For some management of epilepsy is the overriding concern, others have endocrine or neurobehavioral issues to address, for many the legacy of the epileptic seizures can include developmental delay, behavioral issues, pervasive developmental disorders, ADHD and ASD. We have tried to include within this section a range of books touching on each of these areas.
If you choose to buy one of these books please consider utilizing AmazonSmile and the AmazonSmile Foundation will donate 0.5% of the purchase to Hope For Hypothalamic Hamartomas.
Growing Up with Epilepsy: A Practical Guide for Parents
by Lynn Bennett Blackburn
Children With Seizures: A Guide For Parents, Teachers, And Other Professionals
by Martin L. Kutscher
Pediatric Epilepsy Surgery
by Alexis Arzimanoglou, J. Helen Cross, William Gaillard, Gary Mathern, Philippe Kahane, Hans Holthausen, Prasanna Jayakar
Chapter 21 and 34 dedicated to hypothalamic
Epilepsy Patient & Family Guide
by Orrin Devinsky
This book is intended for adult patients and caregivers.
Lee, the Rabbit With Epilepsy
by Deborah M. Moss
The Donut that Roared
by Joan Yordy Brasher with Jackson Grant
Late, Lost and Unprepared, A Parents Guide to Helping Children with Executive Functioning
by Joyce Cooper-Kahn and Laurie Dietzel
Special Needs Advocacy Resource Book
by Rich Weinfeld and Michelle Davis
The Complete IEP Guide – How to Advocate for your Special Ed Child
by Lawrence M. Siegel
From Emotions to Advocacy – The Special Education Survival Guide
by Pam and Pete Wright
Your Child’s Strengths, A Guide for Parents & Teachers
by Jennifer Fox
Smart Kids with Learning Difficulties
by Rich Weinfeld
Executive Skills in Children and Adolescents
by Peg Dawson and Richard Guare
Social Skills Activities for Special Children
by Darlene Mannix
The Optimistic Child, A Proven Program to Safeguard Children Against Depression
by Martin E.P. Seligman
Anxiety-Free Kids
by Bonnie Zucker
How to Handle a Hard-to-Handle Kid
by C. Drew Edwards Phd
Raising a Rare Girl
by Heather Lanier
Healthy Sleep Habits, Happy Child
by Marc Weissbluth MD
Extreme Parenting: parenting your child with a chronic illness
by Sharon Dempsey
Hungry for Solutions: a mother’s quest to defeat hypothalamic and childhood obesity
by Marci Serota, RDN
My Stroke of Insight
by Jill Bolte Taylor
The Brain That Changes Itself
by Norman Doidge, MD
Raising Boys
by Steve Biddulph
The Secret of Happy Children
by Steve Biddulph
