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- 10 Reasons to Enroll in Rare Epilepsy Network (REN) Study
- 2017 International Epilepsy Day
- 2019 HH International Symposium | Meet Dr. William D. Gaillard
- 2021 Virtual Hypothalamic Hamartoma Patient Conference
- 3rd International Hope For HH Symposium | London UK
- 4th International Professional Symposium on Hypothalamic Hamartomas
- A Laughing Seizure, Really?
- A Sister’s Story
- A Story of Kindness | Sierra
- AAN & AES endorse a New Clinical Guideline on SUDEP
- Adults and HH
- Adults With HH – Learn About Focused Ultrasound – A New Non Invasive Surgery for HH
- An Exciting New Approach to Genetic Diagnosis of Children with HH
- April 2010 Article – Introduction to the Research Medical Corner and Dr.Kerrigan
- April 2012 Article by Guest Dr. Rekate, Director, The Chiari Institute, Great Neck, NY
- Arizona Gives Day
- Attention HH Patients, Caregivers & Family: Don’t Miss the 2017 DC Family Forum!
- August 17th – National Nonprofit Day
- Brain Injury and Cognitive Function
- Call to Action for Rare Epilepsy Network for Hypothalamic Hamartoma
- Cannabidiol (CBD) and HH
- CDC Report Finds Epilepsy Remains Widespread
- Celia Strong (1993-2019)
- Challenges Of Having A Sibling With A Rare Disease
- CNF Behavior Survey
- Cognitive, Behavioral, Psychiatric
- Combatting Stress as a Caregiver | Year of the Caregiver
- Comorbidities and HH
- COVID-19 and Rare Disease: One Family’s experience
- Dacrystic Seizures
- DC Family Forum | Meet The Speakers
- DC Family Forum | Meet The Speakers
- DC Family Forum | Meet The Speakers
- DC Family Forum | Meet The Speakers
- DC Family Forum | Meet The Speakers
- DC Family Forum | Meet The Speakers
- DC Family Forum | Meet The Speakers
- DC Family Forum | Now is the time to sign up!
- Diagnostic Tools – Path to Proper Diagnosis of Hypothalamic Hamartoma
- Diagnostics
- Dr Rekate is Retiring
- Endocrine Comorbidities
- Endocrine Dysfunction – What does it mean?
- Endocrinology
- EpiCARE – Shared Expertise in Rare and Complex Epilepsies in the European Union
- EpiCare | News from Hope For HH UK
- Epidiolex Approved by the FDA for Epilepsy
- EPILEPSIA Publishes Article by Hope for HH Research Grantee Dr. Varina L. Boerwinkle
- Epilepsy Across the Spectrum: Promoting Health and Understanding
- Epilepsy Leadership Council (ELC) | 70th American Epilepsy Society (AES) Annual Meeting
- Epilepsy Support Organizations
- Exciting Research Grant Update | Dr. Varina Boerwinkle
- Executive “Dis”Function?
- Facebook Live Q&A: When Laughing or Crying is a Seizure – Hypothalamic Hamartoma
- Feb 28 is Rare Disease Day – HH is Not Alone
- Feeling Overwhelmed? | Year of the Caregiver
- Financial Aid for Family Forum in Washington DC
- Finding Me – CJ Soeby
- Focused Ultrasound | Interview with Dr.Travis Tierney
- Get to Know the Professional | Meet Maggie Bobrowitz
- Getting A Mental Health Referral in the UK & Around the World
- Good Grief Batman!
- Grace Katherine Webster (2003 – 2011)
- Help Us Welcome Volunteer Michelle Swartz To Our Team!
- Help Us Welcome Volunteers Mark & Kristy DeBowes!
- HH Adults – A NEW Study to Understand Your Needs Launches
- HH and College – Be your own best advocate!
- HH Epilepsy | Achieving a Cure For HH
- HH Treatments – How Successful Are They?
- HH, The Hypothalamus and Genealized Epilepsy
- Hope For HH Headlines and past Events
- Hope For HH Turns 10!
- Hope For HH UK | Meet the Team
- HOW CAN I GET ONE OF THOSE?
- Hypothalamic Hamartoma | How will I explain it to others?
- Hypothalamic Hamartomas – Psychiatric Behaviors, Conditions, and Personality Characteristics
- Hypothalamic Hamartomas – Top Cognitive Issues
- Hypothalamic Hamartomas – Top Endocrine Conditions and Symptoms
- Hypothalamic Hamartomas – Surgical Treatment Spectrum
- Independence Day
- Introduction and Update from Carrie
- Izabella Michele Santos Doré (2008 – 2016)
- Jake Case (1982 – 2012)
- January 2011 Article – What Have We Learned About Treating HH and Epilepsy? Part I
- Join the live webcast from AES 2017 | Judith Hoyer Lecture
- Jojo’s Great Life
- July 2012 Article – Hypothalamic Hamartoma: Explaining the Relationship Between the Symptoms and the Anatomy
- Ketogenic Diet and HH
- Laser Ablation for HH Coming to Europe!
- Launched New Content | News, Research & Resources
- Launched New Content | Treatment Facilities
- Lectures
- Living with HH and Planning a Family
- Look Who’s Coming to the DC Family Forum
- March 2011 Article – What Have We Learned About Treating HH and Epilepsy? Part II
- March 26 is International Purple Day
- March of Dimes Heroines of Washington Award
- Media from Around the World
- Meet Abby
- Meet Aiden
- Meet Amanda
- Meet Anniston
- Meet Brett
- Meet Calebe
- Meet Calebe [Translation]
- Meet Carrie
- Meet Carson
- Meet Cecile
- Meet Charlotte (Charli)
- Meet Chloe
- Meet Christopher
- Meet CJ
- Meet David
- Meet Diana – New HH Program Coordinator at Phoenix Children’s Hospital (PCH)!
- Meet Dr. Arthur Cukiert
- Meet Dr. Christine Bulteau
- Meet Dr. Clifford B Saper
- Meet Dr. Hanna Richardson
- Meet Dr. Helen Cross
- Meet Dr. Holan Liang
- Meet Dr. Kerstin Alexandra Klotz
- Meet Dr. Kevin Yuen
- Meet Dr. Maximilin Geiger
- Meet Dr. Michael Hildebrand
- Meet Dr. Peter West
- Meet Dr. Samuel Berkovic
- Meet Dr. Varina L. Boerwinkle
- Meet Elizabeth
- Meet Elleanor
- Meet Faith
- Meet Francesco
- Meet Gabriel
- Meet Gavin
- Meet Glen
- Meet Grace (2003 – 2011)
- Meet Guilherme
- Meet Guilherme [Translation]
- Meet Jack
- Meet Jacob
- Meet Jadyn
- Meet JoJo
- Meet Jordan
- Meet Kaitlyn
- Meet Kate
- Meet Landon
- Meet Layla
- Meet Lou
- Meet Madeleine
- Meet Mark
- Meet Mason
- Meet Mattias
- Meet Max
- Meet Shauna
- Meet Sierra
- Meet Sofia
- Meet Sofia [Translation]
- Meet Taylor
- Meet Zeta
- MRI Imaging and EEGs
- Neurological Comorbidities
- NEW Book on Pediatric Epilepsy Surgery | By Hope For HH MAB Members
- New Discovery of Genetic Variants Responsible for Hypothalamic Hamartoma
- New EpiWatch Research Study!
- New Research Into the Cause of HH
- New Research on Behavioral, Emotional & Cognitive Profiles in Pediatric Hypothalamic Hamartoma Syndrome
- Nov 1 kicks off Epilepsy Awareness month
- October 2010 Article – The range of cognitive functioning in patients with HH
- Overview of Hypothalamic Hamartomas
- Pallister Hall and other Heritable Syndromes
- Pituitary Awareness Month
- Please Participate in the Rare Epilepsy Network (REN) Registry
- Potential Cause of HH Discovered!
- Press Release | Hope For HH London Symposium
- Psychiatric and Behavior Symptoms
- Put Hope for HH on the MAP!
- Rare Disease Day February 28
- Rare Diseases and Employment Challenges
- Rare Epilepsy Network (REN) | 70th American Epilepsy Society (AES) Annual Meeting
- Recommended Books
- REGISTER NOW for the DC FAMILY FORUM, Dec. 2-3
- Research Grants | Dr. Karen Wilcox & Dr. Peter West
- Saving Joelle
- September 2011 Article – Hypothalamic Hamartoma and Brain Imaging
- Session Highlights | 70th American Epilepsy Society (AES) Annual Meeting
- Shopping for the Holidays? Check Out Amazon Smile!
- Sleep Awareness Week
- Stories of Hope
- SUDEP Awareness Series | SUDEP Research
- SUDEP Awareness Series | Talking about SUDEP with your doctors
- SUDEP Awareness Series | What is SUDEP?
- Support HH as you shop for the holidays!
- Surgical Treatments for Hypothalamic Hamartomas
- Thank You to Team Hope | 2017 National Walk For Epilepsy
- The Power of a Walk
- This is My Why | Kathy Jensen
- This Is My Why | Kimberly Ranson
- This Is My Why | Lisa Soeby
- Thriving with HH
- Transition – To What?
- Transition Challenges and Hypothalamic Hamartomas (HH)
- Trouble Sleeping?
- Update on JoJo
- Updated HH MRI Protocol
- Using Resting State Functional MRI to Better Target HH Surgery
- Victoria Lamp (1985 – 2017)
- WALK, WALK, WALK…March 25th
- Weird Girl with A Tumor | Personal HH Journey eBook available on Amazon
- Welcome Intern Afsoon Movahed To Our Team!
- Welcome our New Medical Advisory Board Members
- Welcome Volunteer Angela Donn to our team!
- Welcome Volunteer Bradford Davis to our team!
- Welcome Volunteer Cindy Rubash To Our Team!
- Welcome Volunteer Diane West to our team!
- Welcome Volunteer Lauren Mellon to our team!
- Welcome Volunteer Roza Wu To Our Team!
- Welcome Volunteer Traci Flanagan to our team!
- Welcome Volunteer Whitney Barnett To Our Team!
- What Does A Gelastic or Dacrystic Seizure Feel Like?
- What is Executive Function?
- What is precocious puberty?
- What is Self-Care? | Year of the Caregiver
- What Is That Seizure Called Now?
- What’s your vision for Hope For Hypothalamic Hamartomas in 2017?
- What’s NEW at the HH DC Family Forum?
- Why Do The Comorbidity Survey?
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