Hope for Hypothalamic Hamartomas

We promote research into early detection, improved treatments, living with HH as a complex medical syndrome, and a cure. 

For Researchers

With continuing research on hypothalamic hamartomas, researchers are gaining a better understanding of the condition and its complex comorbidities.

For Professionals

Start here to gain a better understanding of the comorbidities associated with a hypothalamic hamartoma and the appropriate diagnostic tools available to providers today.

For Donors

Contributions are a critical part of our efforts to provide support to patients and families, as well as to educate medical professionals and therapists.

Meet Other Families

Our Programs

Hope for Hypothalamic Hamartomas offers helpful programs to help patients navigate through their journey from initial diagnosis to further treatment and more.

Patient Conferences

  • Providing HH patients and families to connect with one another face to face
  • Multi-day events providing information and education through guest speakers
  • Over the past 10 years Hope For HH has hosted 4 Patient Conferences with the next scheduled for October 2021.

Research Grants

  • Hope For HH continues to fund grants supporting researchers
  • Current grants include:
    • Genomic Profiling
  • Past grants include:
    • Resting state functional Magnetic Resonance Imaging (fMRI)
    • Generating a Novel Rat Model of HH

Patient Support

  • Provided 80 Patient Surgical Support since 2017.
  • Dedicated volunteers providing individual support to patients and families.
  • Downloadable education tools and resources for patients, caregivers and healthcare providers

Professional HH Symposiums

  • Over the past 10 years Hope For HH has funded 3 HH International symposiums with the next scheduled for 2022 in Calgary, Canada.
  • These events gather the foremost experts in hypothalamic hamartomas to increase understanding of HH, disseminate best practices and identify new research opportunities.
  • Hope For HH provides grants to young investigators to attend these events to foster those with pursuing a professional focus on HH

Dr. William D. Gaillard, Chairman, 4th International Symposium on Hypothalamic Hamartomas, shares a brief overview of the 2 day conference and new opportunities for collaboration and research.

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