In the News
For Families
Getting a new diagnosis can be frightening and overwhelming. There is a whole new vocabulary you have never heard before, and not understanding it can mean confusion and further isolation. Start here to learn the basics and make informed decisions.
For Professionals
Correctly diagnosing a hypothalamic hamartoma (HH) can be challenging for even the most experienced professional. Start here to gain a better understanding of the comorbidities associated with a hypothalamic hamartoma and the appropriate diagnostic tools available to providers today.
For Donors
Your contributions are a critical part of our efforts to provide support to patients and families, educate medical professionals and therapists, and to encourage researchers to seek answers to this very complex condition. Start here to read more and support our on-going efforts.
1 in 200k diagnosed worldwide
Often goes undiagnosed or misdiagnosed for years
Seizures commonly unresponsive to medication
Can result in cognitive and behavioral deterioration, learning disabilities, endocrine dysfunction and sleep disturbances
Our partners at Epilepsy Foundation of America recognize the importance of a holistic approach to health for individuals dealing with seizures and epilepsy. This holds true for patients, caregivers, and family members. The Epilepsy Foundation's Wellness Institute highlights the 'Eight Dimensions of Wellness' which includes:...
Thank you Tjabe for raising international awareness of HH and helping drive the mission of Hope For HH! We would not be able to continue our work without support from you and others in our community!
Bedankt Tjabe voor het vergroten van...
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