When an individual is newly diagnosed, no matter what the person’s age, the impact on the family system can be significant.
If you are a parent of a child that has been diagnosed with a hypothalamic hamartoma, you may be seeking how to support your child. You may be seeking what is the recommended wording on how to inform and educate all children in the family about the diagnosis. Understanding how to support oneself as a caregiver, spouse, or even the person receiving the diagnosis will be important to the entire family system that is being challenged by the diagnosis. The following information and suggestions are offered for each member of the family: